Resource was added by: Bec Hanley
Paper by NPC which is useful reading if you're thinking about capturing impact
Framework to capture the impact of involvement
Resource was added by: Bec Hanley
This draft framework has been developed by Shared Learning Group on Involvement members and is currently being piloted by 9 members. It is for use by members only at this stage.
Guidance on Brandon Trust’s impact measurement tool
Resource was added by: Bec Hanley
This review and guidance accompanies the measurement tool, also on this page. Thanks to Emma Baker for sharing.
Brandon Trust’s impact measurement tool
Resource was added by: Bec Hanley
A fantastic and simple tool used at Brandon Trust to measure progress on involvement. This is accompanied by guidance - also on this page. Thanks to Emma Baker for sharing this - note this is for use by members only - please contact Emma for more info.
Capturing the impact of PPI – CRIG paper
Resource was added by: Bec Hanley
What is this resource?
A list of things CRIG members think it’s important to consider when capturing the impact of involvement in research.
Who was it developed by?
CRIG members
When might it be useful?
Read this paper to plan or improve the way you capture the impact of involvement. This document is public and can be shared widely.
Impact report – Alzheimer’s Society Research Network
Resource was added by: Bec Hanley
What is this resource?
Alzheimer’s Society conducted an online survey and interviews with their Research Network volunteers and researchers they had collaborated with.This report details the output of the surveys and interviews, shares case studies and demonstrates the range of ways involvement can have an impact in research.
Who was it developed by?
Alzheimer’s Society.
When might it be useful?
Read this report to plan or improve the way you capture and share the impact of involvement.
PPI feedback – guidance for researchers
Resource was added by: Bec Hanley
What is this resource?
This resource gives guidance to researchers on how to give feedback to people who get involved in research.
Who was it developed by?
Researchers at the University of Hertfordshire.
When might it be useful?
Share this resource with researchers to encourage them to provide feedback and updates to people who get involved in their work.
Arthritis Research UK involvement scoring system
Resource was added by: Bec Hanley
This slide deck explains a system that Chris Macdonald and his colleagues at Arthritis Research UK have developed to enable them to attribute scores to every funded research application to reflect the nature of interaction with patients and the quality of that interaction.
Chris says that although it's not perfect, it means that when you combine the score with other searchable and filter-able criteria, you can correlate scores with institution, individuals, type of grant, research call it was awarded in etc. ARUK can then analyse, assess and identify who needs support, who they can use for case studies or speakers at training sessions, or if a centre needs a slap on the wrist and an offer of training. They can also look at what are the most common types of involvement in certain types research or look across the whole portfolio over time to see how KPI’s (such as a simple ‘have they involved’) change as the community is better resourced and informed.
Cystic Fibrosis Trust feedback form
Resource was added by: Bec Hanley
Used to ask the views of people affected by CF about focus groups to discuss research. Thanks to Lorna Allen for sharing this.
CRUK impact report
Resource was added by: Bec Hanley
Report on how people affected by cancer are influencing the work on CRUK.