Resource was added by: Bec Hanley
We know that involvement in research adds value to research. This report looks at how it adds value for the charities that fund and support research.
Note that this version of the report is for members only. There’s a public version of this report in the news section on our home page. Thanks to Cat Harvey and Laura Piercy for their work on this.
Toolkit for research charities to begin a PPI relationship
Resource was added by: Bec Hanley
A toolkit to help research charities plan for a first involvement meeting with patients and carers. Developer by Health Research charities Ireland and Trinity College Dublin.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that ahs bene put together by a range of organisations.
Parkinson’s UK case studies
Resource was added by: Bec Hanley
Some great examples of involvement in research are included in the Parkinson's UK toolkit for researchers.
Cancer Research UK case studies
Resource was added by: Bec Hanley
Lots of really useful case studies are included in the CRUK toolkit for researchers.
Being Inclusive in Health Related Research
Resource was added by: Bec Hanley
A new publication by INVOLVE. Useful reading for non-research involvement professionals too.
PPI in the development of core outcome sets
Resource was added by: Bec Hanley
Film that explains what core outcome sets (COS) are, why they are important and how patients and the public are involved in developing COS.
CRIG benchmarking survey results 2018 – slides
Resource was added by: Bec Hanley
Presentation about the survey. See also the Excel spreadsheet. If you need a PowerPoint version of this presentation please contact Bec.
CRIG benchmarking survey results 2018
Resource was added by: Bec Hanley
Full results of our benchmarking survey in an Excel spreadsheet. Thanks to the benchmarking group for their work on this project, especially Caroline Schmutz who put this spreadsheet together.
Guidance about having patients and carers as co-applicants in research
Resource was added by: Bec Hanley
Useful guidance to help patients and carers who are asked to be co-applicants on a research funding application, and researchers who want to do this.