Resource was added by: Bec Hanley
A summary from our meeting in December 2020.
Involving
Resource was added by: Bec Hanley
Guidance on PPI in lab based research, and a report of a project which informed the development of this guidance. Two CRIG members - Alzheimer's Society and Parkinson's UK - worked on this in partnership with UCLH Biomedical Research Centre.
Training and learning for PPI members – what CRIG members are doing
Resource was added by: Bec Hanley
This grid outlines what CRIG members have on offer in terms of training for Patient and Public Involvement (PPI) representatives/members. The grid does not list training for researchers. It is broken down into different categories and has sections for people who are new to PPI and those who are more experienced. It is a resource for CRIG members who may be looking to develop training for the PPI representatives involved in their work and who want to see if there are any existing resources that can be adapted, or for those looking to provide training and want to see if there is anything that already exists that would be suitable. If you would like to use one of the training resources below, please ensure that you let the relevant contact know before doing so.
For this to be a useful resource, we ask that all CRIG members add training that their organisations have available to this grid.
MS Society guide to reviewing grant applications
Resource was added by: Bec Hanley
Thanks to Jenny Robertson for sharing this.
MS Society Research Network distance learning pack
Resource was added by: Bec Hanley
This pack is sent to people affected by MS who join the MS Society's Research Network. Thanks to Jenny Robertson for sharing it.
How does PPI in research add value for charities?
Resource was added by: Bec Hanley
We know that involvement in research adds value to research. This report looks at how it adds value for the charities that fund and support research.
Note that this version of the report is for members only. There’s a public version of this report in the news section on our home page. Thanks to Cat Harvey and Laura Piercy for their work on this.
Toolkit for research charities to begin a PPI relationship
Resource was added by: Bec Hanley
A toolkit to help research charities plan for a first involvement meeting with patients and carers. Developer by Health Research charities Ireland and Trinity College Dublin.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that has been put together by a range of organisations.
Parkinson’s UK case studies
Resource was added by: Bec Hanley
Some great examples of involvement in research are included in the Parkinson's UK toolkit for researchers.
Cancer Research UK case studies
Resource was added by: Bec Hanley
Lots of really useful case studies are included in the CRUK toolkit for researchers.