Resource was added by: Bec Hanley
What is this resource?
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must read this guidance and complete a form. Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the website.
Who was it developed by?
Asthma UK (which is now Asthma and Lung UK)
When might it be useful?
Refer to these guidelines if you are looking to promote your service to researchers, outline the conditions of your support or establish 'rules' about your PPI programme.
Service user involvement and co-production
Resource was added by: Bec Hanley
This guide was put together by Clinks, the charity that supports, represents and campaigns for
the voluntary sector working with offenders, ex-offenders and their families.
Slides from training day on strategic thinking
Resource was added by: Bec Hanley
Here are the slides from the training day held on 9th May 2017 about thinking strategically. This day was led by Bernie Ramsay.
The slides are in pdf format as the file is so large. If you need the PowerPoint version please contact Bec.
West of England Academic Health Science Network
Resource was added by: Bec Hanley
Working Together: A toolkit for health professionals on how to involve the public
How not to do service user involvement
Resource was added by: Bec Hanley
Nice film from Peter Beresford at Shaping Our Lives on how not to involve people.
Notes on plans to develop an involvement strategy for Action on Hearing Loss
Resource was added by: Bec Hanley
These are the notes Rachael shared when she talked about her plans to develop an involvement strategy at our meeting in August 2016.
What does the word ‘involvement’ bring to mind?
Resource was added by: Bec Hanley
A collection of words that were listed by members of the Shared Learning Group.
Terminology
Resource was added by: Bec Hanley
This paper aims to share some of our discussions about the terminology we use to describe the people we work with. We have also drawn on definitions developed by Shaping Our Lives and the Mental Health Foundation to inform this paper.
4PI National Involvement Standards
Resource was added by: Bec Hanley
The National Survivor User Network (NSUN) developed a set of national standards for the involvement of service users and carers in mental health and social care services.
Service users, volunteers and supporters
Resource was added by: Bec Hanley
This is an updated paper which looks at the similarities and differences between service users, volunteers and supporters.