Resource was added by: Bec Hanley
A summary from our meeting in December 2020.
Involving
Resource was added by: Bec Hanley
Guidance on PPI in lab based research, and a report of a project which informed the development of this guidance. Two CRIG members - Alzheimer's Society and Parkinson's UK - worked on this in partnership with UCLH Biomedical Research Centre.
Final report
Resource was added by: Bec Hanley
Final report on a project looking at PPI in lab based research, led by Alzheimer's Society, Parkinson's UK and the NIHR Biomedical Research Centre at UCLH. This report led to the development of a website offering guidance about PPI in lab based research - link is on this page.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that has been put together by a range of organisations.
Form and guidance for researchers who want help to find PPI contributors
Resource was added by: Bec Hanley
Members of the Charities Research Involvement Group are often approached by researchers who want to find PPI contributors to actively involve in their work. Many of us ask researchers to complete an application form to help us to decide whether to share this request with our networks, and if so what information to share.
We've produced this guidance to help all members to produce or improve such a form.
Supporting PPI in industry-led research
Resource was added by: Bec Hanley
This guidance was produced by the CRIG Pharma Working Group, working in partnership with Claire Nolan (a freelancer) and Health Research Charities Ireland (HRCI). Thanks to HRCI for the design.
PPI in the development of core outcome sets
Resource was added by: Bec Hanley
Film that explains what core outcome sets (COS) are, why they are important and how patients and the public are involved in developing COS.
Guidance about having patients and carers as co-applicants in research
Resource was added by: Bec Hanley
Useful guidance to help patients and carers who are asked to be co-applicants on a research funding application, and researchers who want to do this.
CRUK patient involvement toolkit for researchers
Resource was added by: Bec Hanley
This online toolkit provides guidance, tips and templates to help researchers to plan, deliver and evaluate patient involvement.
CRUK’s toolkit for researchers
Resource was added by: Bec Hanley
Use this link to access Cancer Research UK's toolkit for researchers.