Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 7 August, 2019

Our main focus was managing expectations of staff and of people who get involved. This included discussion about:

  • The information we send people who express an interest and induction
  • How we manage expectations of how much impact (or say) people can have
  • How we prioritise requests from staff without squashing people’s enthusiasm

We had a great presentation about involvement in strategy development at the British Heart Foundation.

We reviewed the results of our survey of senior leaders about attitudes to involvement and discussed next steps.

Charities Research Involvement Group

Meeting Held 26 September, 2019

Our biggest attendance yet, and lots of really interesting presentations and discussions.

We launched our guidance on supporting PPI in industry-led research. Link to this is in our news section – scroll down this page….

In our session on how to share PPI opportunities with researchers and promote our involvement networks, Lorcan Kenny talked about Autistica’s Discover Network and Natasha  Ratcliffe talked about the support agreement and accompanying guidance for researchers that Parkinson’s UK’s has developed.

We also heard about the creation of an insight group at JDRF.

We’ve updated our researcher training template, and in January we’ll be running training to help our members deliver this training.

Our Members


Charities Research Involvement Group Members

Associate Members