Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Our main topic for discussion was: How to make complex information accessible
We heard how National Deaf Children’s Society had worked with Roma families and the need to make information accessible, from Hft about communicating with people with low literacy or with a learning disability, and from Safe Passage about communicating with young people from refugee backgrounds with English as a second language.
We decided to continue our two-weekly peer support meetings, and we’ve set up a new group for people working at a ‘heads of’ level, with the aim of creating a space for shared learning and peer support in relation to leadership in involvement.
Lots of really interesting questions raised in the ‘ask a question’ agenda item, including whether anyone had any experience of setting up a quality improvement group where there is genuine partnership between staff and service users/carers; and whether anyone had any knowledge of involvement kitemarks or quality marks.
Charities Research Involvement Group
Our main discussion topic was: Involving people now and post-pandemic.
We began a discussion about how PPI in research adds value for charities and will be sharing a report on this in September.
Avril Kennan introduced her new training toolkit for research charities.
We welcomed Jeremy Taylor, the new NIHR Director for Public Voice. He leads the NIHR Centre for Engagement and Dissemination.
We thanked our members who volunteered for the Charities Research Involvement Group whilst on furlough: Annie Amjad, Heather Cooper, Jess Hall, Cat Harvey, Laura Lucas, Laura Piercy and Jenny Robertson. Some great work done….
News & Featured Documents
Toolkit for research charities starting a PPI relationship
How do we begin the conversation about research involvement with patients and the public? This new PPI Toolkit, published by our member organisation Health Research Charities Ireland, helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors.
3rd July 2020
Involving people when you can’t involve them face-to-face
During this pandemic, it’s more important than ever to listen to the voices of people we seek to support.
Most charities have little experience of involving people virtually on a regular or large scale basis – until the last few weeks, much of their involvement activity has been face-to-face, because this is what many people prefer. We all need to move fast to respond to the changing situation. So members to share their experience to date and to come up with some tips and ideas. The write-up of our discussion is here: Online involvement-public
15th April 2020
Running a big interactive meeting using Zoom
The most recent meeting of the Charities Research Involvement Group took place via Zoom. Here are our notes on how we planned for and ran this meeting – hope these will be useful for anyone who is planning a big interactive virtual meeting for the 1st (or 2nd or 3rd) time: CRIG zoom meeting
20th March 2020
A form and guidance to use to ask the right questions of researchers who want to involve people
Members of the Charities Research Involvement Group are often approached by researchers who want to find PPI contributors to actively involve in their work. Many of our members ask researchers to complete an application form to help them to decide whether to share this request with their networks, and if so what information to share. We have produced this guidance to help our members to produce or improve such a form. We’re making it more widely available so that other charities can use it if they wish. View the guidance here: Template and guidance for researchers-public
11th December 2019
Supporting involvement in industry-led research: new guidance
This guidance has been developed by the Charities Research Involvement Group in collaboration with the Health Research Charities Ireland. It’s to help charities in the UK and the Republic of Ireland to promote and support involvement in industry-led research. Supporting PPI in industry-led research
25th September 2019
Community Fund report on co-production
Report from the Community Fund on how co-production adds value. Co-pro report-public
25th September 2019
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019