Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 4 December, 2019

Lots of discussion and skills and experience shared at this meeting – there was a real buzz in the room…

We had a ‘consultation wheel’ so that everyone could share skills and experience. We also shared some written materials.

We agreed to develop some guidance for members on developing train for people who get involved about what involvement is.

We heard about Anthony Nolan Trust’s community involvement strategy, a new British Heart Foundation project to explore innovative ways to involve people and to enable peer support and about peer support plans at National Deaf Children’s Society.

We also agreed to run some training on how we can influence senior leaders to support and promote involvement.

Charities Research Involvement Group

Meeting Held 9 December, 2019

Another really useful meeting. Our main discussion topic was how to help people to review applications well, and included presentations from Parkinson’s UK, the MS Society, Diabetes UK and Versus Arthritis. We shared information about what we ask lay reviewers and how we do this.

We launched our template application form and guidance notes for researchers who are requesting help with PPI. This is here: Template and guidance for researchers-public

We reviewed the results of our benchmarking survey.

And we had a great session with colleagues from the Health Research Authority.

Our Members

Observers

Charities Research Involvement Group Members

Associate Members