Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Our main focus was managing expectations of staff and of people who get involved. This included discussion about:
- The information we send people who express an interest and induction
- How we manage expectations of how much impact (or say) people can have
- How we prioritise requests from staff without squashing people’s enthusiasm
We had a great presentation about involvement in strategy development at the British Heart Foundation.
We reviewed the results of our survey of senior leaders about attitudes to involvement and discussed next steps.
Charities Research Involvement Group
Our biggest attendance yet, and lots of really interesting presentations and discussions.
We launched our guidance on supporting PPI in industry-led research. Link to this is in our news section – scroll down this page….
In our session on how to share PPI opportunities with researchers and promote our involvement networks, Lorcan Kenny talked about Autistica’s Discover Network and Natasha Ratcliffe talked about the support agreement and accompanying guidance for researchers that Parkinson’s UK’s has developed.
We also heard about the creation of an insight group at JDRF.
We’ve updated our researcher training template, and in January we’ll be running training to help our members deliver this training.
News & Featured Documents
Supporting involvement in industry-led research: new guidance
This guidance has been developed by the Charities Research Involvement Group in collaboration with the Health Research Charities Ireland. It’s to help charities in the UK and the Republic of Ireland to promote and support involvement in industry-led research. Supporting PPI in industry-led research
25th September 2019
Community Fund report on co-production
Report from the Community Fund on how co-production adds value. Co-pro report-public
25th September 2019
Dementia experience toolkit
The dementia experience toolkit has been co-produced by 100 people living with dementia and the Alzheimer’s Society. It’s quick and easy to read and it’s transferable to other fields. There are lots of links to videos, free resources, useful organisations and research studies.
15th July 2019
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018
Shared practice paper on involvement in laboratory based research
Much has been written about involving people in clinical, public health and social care research. Much less has been written about involving people in laboratory based research, or in other types of research where researchers have no direct contact with patients or family members.
In this paper we consider why researchers should involve people in laboratory based research, how they might do this and what the impact of involvement in this type of research can be. Lab-based-research-FINAL-10-8-16-public
30th September 2016