Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Our main topic for discussion was about avoiding dependency and how to support people to move on. Very helpful experience shared by St Mungo’s, Brandon Trust and Anthony Nolan. We also heard how Young Women’s Trust involves young women in campaigning. And we reviewed the results of our benchmarking survey – involvement activity is growing in many member charities, which is great news…
Charities Research Involvement Group
Our 1st virtual meeting was a big success and very interactive. The main topic for discussion was working with vulnerable or hard to involve groups and how to involve them well – great presentations from Autistica and Alzheimer’s Society and very useful small group discussions. We also learned loads from excellent presentations from Health Data Research UK and Crohn’s and Colitis UK about involvement in big data research. And we had time for people to ask questions.
Our learning on running a big interactive meeting on Zoom is on the news/featured documents section on this home page – just scroll down….
News & Featured Documents
Running a big interactive meeting using Zoom
The most recent meeting of the Charities Research Involvement Group took place via Zoom. Here are our notes on how we planned for and ran this meeting – hope these will be useful for anyone who is planning a big interactive virtual meeting for the 1st (or 2nd or 3rd) time: CRIG zoom meeting
20th March 2020
A form and guidance to use to ask the right questions of researchers who want to involve people
Members of the Charities Research Involvement Group are often approached by researchers who want to find PPI contributors to actively involve in their work. Many of our members ask researchers to complete an application form to help them to decide whether to share this request with their networks, and if so what information to share. We have produced this guidance to help our members to produce or improve such a form. We’re making it more widely available so that other charities can use it if they wish. View the guidance here: Template and guidance for researchers-public
11th December 2019
Supporting involvement in industry-led research: new guidance
This guidance has been developed by the Charities Research Involvement Group in collaboration with the Health Research Charities Ireland. It’s to help charities in the UK and the Republic of Ireland to promote and support involvement in industry-led research. Supporting PPI in industry-led research
25th September 2019
Community Fund report on co-production
Report from the Community Fund on how co-production adds value. Co-pro report-public
25th September 2019
Dementia experience toolkit
The dementia experience toolkit has been co-produced by 100 people living with dementia and the Alzheimer’s Society. It’s quick and easy to read and it’s transferable to other fields. There are lots of links to videos, free resources, useful organisations and research studies.
15th July 2019
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018