Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 5 February, 2020

Our main topic for discussion was about avoiding dependency and how to support people to move on. Very helpful experience shared by St Mungo’s, Brandon Trust and Anthony Nolan. We also heard how Young Women’s Trust involves young women in campaigning. And we reviewed the results of our benchmarking survey – involvement activity is growing in many member charities, which is great news…

Charities Research Involvement Group

Meeting Held 9 December, 2019

Another really useful meeting. Our main discussion topic was how to help people to review applications well, and included presentations from Parkinson’s UK, the MS Society, Diabetes UK and Versus Arthritis. We shared information about what we ask lay reviewers and how we do this.

We launched our template application form and guidance notes for researchers who are requesting help with PPI. This is here: Template and guidance for researchers-public

We reviewed the results of our benchmarking survey.

And we had a great session with colleagues from the Health Research Authority.

Our Members

Observers

Charities Research Involvement Group Members

Associate Members