Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Our main topic was: how to embed involvement and make it sustainable. We had some great presentations (thanks CRUK and Alzheimer’s Society) and some useful discussion about how to demonstrate the value of involvement.
We finalised our paper on involvement and volunteering – it’s available on our home page.
There were lots of updates shared – keep an eye on our Twitter account (@SLGInvolvement) – and questions asked (and answered). We had a really enlightening discussion about involvement in recruitment of staff, and we’re planning one about involvement in governance at our August meeting.
Charities Research Involvement Group
Another packed meeting – and our biggest attendance so far.
Our main discussion topic was involvement in lab based research – lots of really interesting discussion and presentations. We’re planning a joint twitter chat on this topic on 30th April at 4pm. We’ll be tweeting on @SLGInvolvement.
We reviewed our very successful workshop on involvement in pharma research – we’ll be developing some guidance on this topic.
We also heard from MHRA about their involvement activities.
News & Featured Documents
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
Learning for involvement in research
New resource developed by INVOLVE: http://learningforinvolvement.org.uk/
19th February 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019
Mind has produced a fabulous influencing and participation toolkit. It’s free for anyone to use. Link is here: https://www.mind.org.uk/iptoolkit
3rd January 2019
CRUK patient involvement toolkit for researchers
Great resource for researchers, now improved and updated. https://www.cancerresearchuk.org/funding-for-researchers/patient-involvement-toolkit-for-researchers
16th November 2018
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018
Shared practice paper on involvement in laboratory based research
Much has been written about involving people in clinical, public health and social care research. Much less has been written about involving people in laboratory based research, or in other types of research where researchers have no direct contact with patients or family members.
In this paper we consider why researchers should involve people in laboratory based research, how they might do this and what the impact of involvement in this type of research can be. Lab-based-research-FINAL-10-8-16-public
30th September 2016
Supporting involvement in pharma
Discussions about supporting involvement in pharma. View discussion
27th June 2016