Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Our main focus was managing expectations of staff and of people who get involved. This included discussion about:
- The information we send people who express an interest and induction
- How we manage expectations of how much impact (or say) people can have
- How we prioritise requests from staff without squashing people’s enthusiasm
We had a great presentation about involvement in strategy development at the British Heart Foundation.
We reviewed the results of our survey of senior leaders about attitudes to involvement and discussed next steps.
Charities Research Involvement Group
This meeting was packed full of interesting stuff (as well as packed with members – good to see everyone), including:
- Maryrose Tarpey from the NIHR Impact Working Group talking about how the NIHR is approaching this task
- Members from Alzheimer’s society and MS Society talking about how they capture impact
- A great talk about how the Scarfree Foundation is involving armed forces veterans in research
Plus updates on our work to:
- Promote involvement in pharma research
- Develop a template application for researchers to complete when they want to help with involvement
- Adapt our PPI training for researchers so that it’s more relevant to lab based researchers
Thanks to everyone who came along and everyone who shared info.
News & Featured Documents
Dementia experience toolkit
The dementia experience toolkit has been co-produced by 100 people living with dementia and the Alzheimer’s Society. It’s quick and easy to read and it’s transferable to other fields. There are lots of links to videos, free resources, useful organisations and research studies.
15th July 2019
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
Learning for involvement in research
New resource developed by INVOLVE: http://learningforinvolvement.org.uk/
19th February 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019
Mind has produced a fabulous influencing and participation toolkit. It’s free for anyone to use. Link is here: https://www.mind.org.uk/iptoolkit
3rd January 2019
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018
Shared practice paper on involvement in laboratory based research
Much has been written about involving people in clinical, public health and social care research. Much less has been written about involving people in laboratory based research, or in other types of research where researchers have no direct contact with patients or family members.
In this paper we consider why researchers should involve people in laboratory based research, how they might do this and what the impact of involvement in this type of research can be. Lab-based-research-FINAL-10-8-16-public
30th September 2016
Supporting involvement in pharma
Discussions about supporting involvement in pharma. View discussion
27th June 2016