Welcome to the Shared Learning Group on Involvement
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Shared Learning Group on Involvement in Research.
Latest Meeting Summaries
Shared Learning Group on Involvement
Simon Denegri, National Director for Patients and the Public in Research at the National Institute for Health Research (NIHR) and Chair, INVOLVE led an excellent session on communicating with and influencing other staff about involvement. Notes from this session will be available to members in the password protected area of this website later this month.
Cris Gangemi shared a film made by Livability illustrating the importance of stories and Lydia Morgan talked about involvement in local campaigning.
We identified and prioritised discussion topics for training and for meetings in 2017/18.
Finally we shared different ways of sharing involvement opportunities as widely as possible.
Shared Learning Group on Involvement in Research
This meeting included:
- a presentation by Simon Denegri and discussions about how we can work more closely with NIHR;
- updates from Parkinson’s UK on their evaluation of involvement in research supported by the charity and from Breast Cancer Now on how they are involving people affected by breast cancer in research;
- plans to offer a session on involvement as part of the AMRC essential training for research managers
- a discussion abut plans to benchmark members’ activities around involvement in research;
- a discussion about how members monitor involvement in funded projects
News & Featured Documents
How not to do service user involvement
Great film from Peter Beresford at Shaping Our Lives on how not to do service user involvement downloadable here
22nd January 2017
Great introductory exercise: Get everyone into small groups. Ask everyone in each small group to choose one of these sentences and complete it. Then get each small group to choose the completed story/sentence they like best and get this person to share their story with the whole group. Thanks Lindsay for sharing this.
12th December 2016
New shared practice paper on involvement in laboratory based research
Much has been written about involving people in clinical, public health and social care research. Much less has been written about involving people in laboratory based research, or in other types of research where researchers have no direct contact with patients or family members.
In this paper we consider why researchers should involve people in laboratory based research, how they might do this and what the impact of involvement in this type of research can be. Lab-based-research-FINAL-10-8-16-public
30th September 2016
New Shared Practice paper
New Shared Practice paper on involving people online and by phone. Read paper
27th June 2016
Supporting involvement in pharma
Discussions about supporting involvement in pharma. View discussion
27th June 2016
New publication by NCB
New publication by NCB about involving young children and their families – Ready to Listen. Why, when and how to involve young children and their families in local decisions about health and wellbeing. View publication
27th June 2016