Welcome to the Shared Learning Group on Involvement

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Shared Learning Group on Involvement in Research.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 12 December, 2018

A real sense of shared learning at this meeting – we ran an exercise where everyone could offer to share skills and experience with others.

We heard about plans for our ‘dealing with difficult conversations’ training day, and about work to persuade senior leaders of the value of involvement. We also had an update from the working group developing an e-learning tool for staff about involvement.

We heard about the development of local involvement groups at Action on Hearing Loss and about Mind’s new Influencing and Participation Toolkit.

Shared Learning Group on Involvement in Research

Meeting Held 13 December, 2018

We looked at results from our latest benchmarking survey and followed this with a World Café to share our experience of different areas of involvement practice.

We heard about plans to develop some top tips on working with pharma to support PPI in pharma.

Colleagues from the NIHR Clinical Research Network talked about their new service to help pharma companies seek input from patients and carers about their research plans, and we heard about how Breast Cancer Now involves people affected by breast cancer in the charity’s research.

Our Members


Shared Learning Group on Involvement in Research Members

Associate Members