Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 7 August, 2019

Our main focus was managing expectations of staff and of people who get involved. This included discussion about:

  • The information we send people who express an interest and induction
  • How we manage expectations of how much impact (or say) people can have
  • How we prioritise requests from staff without squashing people’s enthusiasm

We had a great presentation about involvement in strategy development at the British Heart Foundation.

We reviewed the results of our survey of senior leaders about attitudes to involvement and discussed next steps.

Charities Research Involvement Group

Meeting Held 18 June, 2019

This meeting was packed full of interesting stuff (as well as packed with members – good to see everyone), including:

  • Maryrose Tarpey from the NIHR Impact Working Group talking about how the NIHR is approaching this task
  • Members from Alzheimer’s society and MS Society talking about how they capture impact
  • A great talk about how the Scarfree Foundation is involving armed forces veterans in research

Plus updates on our work to:

  • Promote involvement in pharma research
  • Develop a template application for researchers to complete when they want to help with involvement
  • Adapt our PPI training for researchers so that it’s more relevant to lab based researchers

Thanks to everyone who came along and everyone who shared info.

Our Members


Charities Research Involvement Group Members

Associate Members