Welcome to the Shared Learning Group on Involvement
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Shared Learning Group on Involvement in Research.
Latest Meeting Summaries
Shared Learning Group on Involvement
A real sense of shared learning at this meeting – we ran an exercise where everyone could offer to share skills and experience with others.
We heard about plans for our ‘dealing with difficult conversations’ training day, and about work to persuade senior leaders of the value of involvement. We also had an update from the working group developing an e-learning tool for staff about involvement.
We heard about the development of local involvement groups at Action on Hearing Loss and about Mind’s new Influencing and Participation Toolkit.
Shared Learning Group on Involvement in Research
We looked at results from our latest benchmarking survey and followed this with a World Café to share our experience of different areas of involvement practice.
We heard about plans to develop some top tips on working with pharma to support PPI in pharma.
Colleagues from the NIHR Clinical Research Network talked about their new service to help pharma companies seek input from patients and carers about their research plans, and we heard about how Breast Cancer Now involves people affected by breast cancer in the charity’s research.
News & Featured Documents
Mind has produced a fabulous influencing and participation toolkit. It’s free for anyone to use. Link is here: https://www.mind.org.uk/iptoolkit
3rd January 2019
CRUK patient involvement toolkit for researchers
Great resource for researchers, now improved and updated. https://www.cancerresearchuk.org/funding-for-researchers/patient-involvement-toolkit-for-researchers
16th November 2018
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018
Shared practice paper on involvement in laboratory based research
Much has been written about involving people in clinical, public health and social care research. Much less has been written about involving people in laboratory based research, or in other types of research where researchers have no direct contact with patients or family members.
In this paper we consider why researchers should involve people in laboratory based research, how they might do this and what the impact of involvement in this type of research can be. Lab-based-research-FINAL-10-8-16-public
30th September 2016
Supporting involvement in pharma
Discussions about supporting involvement in pharma. View discussion
27th June 2016