Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

Become a Member

Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

How to Join

Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 5 June, 2019

Our main topic was: how to embed involvement and make it sustainable. We had some great presentations (thanks CRUK and Alzheimer’s Society) and some useful discussion about how to demonstrate the value of involvement.

We finalised our paper on involvement and volunteering – it’s available on our home page.

There were lots of updates shared – keep an eye on our Twitter account (@SLGInvolvement) – and questions asked (and answered). We had a really enlightening  discussion about involvement in recruitment of staff, and we’re planning one about involvement in governance at our August meeting.

Charities Research Involvement Group

Meeting Held 18 June, 2019

This meeting was packed full of interesting stuff (as well as packed with members – good to see everyone), including:

  • Maryrose Tarpey from the NIHR Impact Working Group talking about how the NIHR is approaching this task
  • Members from Alzheimer’s society and MS Society talking about how they capture impact
  • A great talk about how the Scarfree Foundation is involving armed forces veterans in research

Plus updates on our work to:

  • Promote involvement in pharma research
  • Develop a template application for researchers to complete when they want to help with involvement
  • Adapt our PPI training for researchers so that it’s more relevant to lab based researchers

Thanks to everyone who came along and everyone who shared info.

Our Members


Charities Research Involvement Group Members

Associate Members