Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group
We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.
Latest Meeting Summaries
Shared Learning Group on Involvement
Lots of discussion and skills and experience shared at this meeting – there was a real buzz in the room…
We had a ‘consultation wheel’ so that everyone could share skills and experience. We also shared some written materials.
We agreed to develop some guidance for members on developing train for people who get involved about what involvement is.
We heard about Anthony Nolan Trust’s community involvement strategy, a new British Heart Foundation project to explore innovative ways to involve people and to enable peer support and about peer support plans at National Deaf Children’s Society.
We also agreed to run some training on how we can influence senior leaders to support and promote involvement.
Charities Research Involvement Group
Another really useful meeting. Our main discussion topic was how to help people to review applications well, and included presentations from Parkinson’s UK, the MS Society, Diabetes UK and Versus Arthritis. We shared information about what we ask lay reviewers and how we do this.
We launched our template application form and guidance notes for researchers who are requesting help with PPI. This is here: Template and guidance for researchers-public
We reviewed the results of our benchmarking survey.
And we had a great session with colleagues from the Health Research Authority.
News & Featured Documents
PPI in industry research – twitter chat
It’s time to talk about public & patient involvement in industry research! Join @HRCIreland and @SLGInvolvement for a #industryPPI Tweetchat, 8pm Jan 29th. Special guests…. #HealthResarchMatters #pharma #pharmaceutical #biotech. Read more here: PPI in industry
17th January 2020
A form and guidance to use to ask the right questions of researchers who want to involve people
Members of the Charities Research Involvement Group are often approached by researchers who want to find PPI contributors to actively involve in their work. Many of our members ask researchers to complete an application form to help them to decide whether to share this request with their networks, and if so what information to share. We have produced this guidance to help our members to produce or improve such a form. We’re making it more widely available so that other charities can use it if they wish. View the guidance here: Template and guidance for researchers-public
11th December 2019
Supporting involvement in industry-led research: new guidance
This guidance has been developed by the Charities Research Involvement Group in collaboration with the Health Research Charities Ireland. It’s to help charities in the UK and the Republic of Ireland to promote and support involvement in industry-led research. Supporting PPI in industry-led research
25th September 2019
Community Fund report on co-production
Report from the Community Fund on how co-production adds value. Co-pro report-public
25th September 2019
Dementia experience toolkit
The dementia experience toolkit has been co-produced by 100 people living with dementia and the Alzheimer’s Society. It’s quick and easy to read and it’s transferable to other fields. There are lots of links to videos, free resources, useful organisations and research studies.
15th July 2019
Involvement and volunteering
Involvement and volunteering – what are the key differences and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers
10th June 2019
We’re on Twitter!
Follow us on @SLGInvolvement….
12th February 2019
Things to consider if you are capturing the impact of involvement in research
This guidance document has been developed by the Shared Learning Group on Involvement in Research, with input from patients, carers and researchers. Anyone is free to use it – pleas let us know what you think! Things to consider if you are capturing impact FINAL-public
5th July 2018