Welcome to the Shared Learning Group on Involvement

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Shared Learning Group on Involvement in Research.

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Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 7 December, 2016

Simon Denegri, National Director for Patients and the Public in Research at the National Institute for Health Research (NIHR) and Chair, INVOLVE led an excellent session on communicating with and influencing other staff about involvement. Notes from this session will be available to members in the password protected area of this website later this month.

Cris Gangemi shared a film made by Livability illustrating the importance of stories and Lydia Morgan talked about involvement in local campaigning.

We identified and prioritised discussion topics for training and for meetings in 2017/18.

Finally we shared different ways of sharing involvement opportunities as widely as possible.

Shared Learning Group on Involvement in Research

Meeting Held 14 December, 2016

This meeting included:

  • a presentation by Simon Denegri and discussions about how we can work more closely with NIHR;
  • updates from Parkinson’s UK on their evaluation of involvement in research supported by the charity and from  Breast Cancer Now on how they are involving people affected by breast cancer in research;
  • plans to offer a session on involvement as part of the AMRC essential training for research managers
  • a discussion abut plans to benchmark members’ activities around involvement in research;
  • a discussion about how members monitor involvement in funded projects


Our Members


Shared Learning Group on Involvement in Research Members

Associate Members