Guidance on PPI in lab based research

New, practical guidance put together by Alzheimer’s Society, Parkinson’s UK and NIHR Biomedical Research Centre at University College London Hospitals NHS Foundation Trust on PPI in lab based research – developed in partnership with patients, carers and lab based researchers. Link is here.

7th December 2020

How does involvement in research add value for charities?

There’s growing evidence that involvement adds value to research. But does it add value for the charities that fund and/or support research? Here’s our report. Note to members – there’s a more detailed version of this report in the Resource Centre. Involvement adds value FINAL REPORT PUBLIC VERSION

16th September 2020

Toolkit for research charities starting a PPI relationship

How do we begin the conversation about research involvement with patients and the public? This new PPI Toolkit, published by our member organisation Health Research Charities Ireland,  helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors.

3rd July 2020

Involving people when you can’t involve them face-to-face

During this pandemic, it’s more important than ever to listen to the voices of people we seek to support.

Most charities have little experience of involving people virtually on a regular or large scale basis – until the last few weeks, much of their involvement activity has been face-to-face, because this is what many people prefer. We all need to move fast to respond to the changing situation. So members to share their experience to date and to come up with some tips and ideas. The write-up of our discussion is here: Online involvement-public

15th April 2020

Running a big interactive meeting using Zoom

The most recent meeting of the Charities Research Involvement Group took place via Zoom. Here are our  notes on how we planned for and ran this meeting – hope these will be useful for anyone who is planning a big interactive virtual meeting for the 1st (or 2nd or 3rd) time: CRIG zoom meeting

20th March 2020

A form and guidance to use to ask the right questions of researchers who want to involve people

Members of the Charities Research Involvement Group are often approached by researchers who want to find PPI contributors to actively involve in their work. Many of our members ask researchers to complete an application form to help them to decide whether to share this request with their networks, and if so what information to share. We have produced this guidance to help our members to produce or improve such a form. We’re making it more widely available so that other charities can use it if they wish. View the guidance here: Template and guidance for researchers-public

11th December 2019

Supporting involvement in industry-led research: new guidance

This guidance has been developed by the Charities Research Involvement Group in collaboration with the Health Research Charities Ireland. It’s to help charities in the UK and the Republic of Ireland to promote and support involvement in industry-led research.  Supporting PPI in industry-led research

25th September 2019

Involvement and volunteering

Involvement and volunteering – what are the key differences  and similarities? When is it important to pay attention to this? See our latest paper here: Service users and volunteers

10th June 2019