Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to enable shared learning about the involvement of people with lived experience between charities working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 3 December, 2024

Another full and interesting meeting.

Our main topic for discussion was capturing the impact of involvement. Thanks to colleagues from Mind and Stroke Association for sharing their experience.

We also heard about a review of involvement support undertaken by Pancreatic Cancer UK.

Charities Research Involvement Group

Meeting Held 4 December, 2024

A really interesting and wide-ranging meeting. Our main topic for discussion was involvement in lab-based research – thanks to Laura Jacobs from Parkinson’s UK for sharing her experience. We also heard about involvement in the development of the new Children’s Cancer and Leukaemia Group research strategy. And about the resources offered by Patient Focused Medicines Development.