Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

How to Join

Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 2 December, 2020

Really good discussions at this meeting about:

  • Payment for involvement
  • Involvement in strategy development/strategy refresh
  • Involving people online

Plus a really interesting talk on involvement in quality improvement projects. And lots of fab questions raised and answered about a range of issues by our members.

Thanks to everyone who shared info.


Charities Research Involvement Group

Meeting Held 7 December, 2020

This meeting saw the launch of new guidance on PPI in lab based research – two of our members, Alzheimer’s Society and Parkinson’s UK, were partners in this, along with the UCLH Biomedical Research Centre. This led to really interesting discussions about how we can support PPI in this type of research. The guidance is here:  https://sites.google.com/parkinsons.org.uk/ppi-in-lab-based-research

We also heard about the plans Versus Arthritis are developing to encourage people to take part in research, and how people affected by arthritis have shaped these.

Plus loads of questions asked (and answered) by members.

Our Members


Charities Research Involvement Group Members

Associate Members