Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to enable shared learning about the involvement of people with lived experience between charities working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 8 April, 2025

Our main topic for discussion was working with senior leaders to promote and support involvement. Thanks to colleagues at Royal Society for Blind Children, Alzheimer’s Research UK and Parkinson’s UK for sharing their experience. We also heard about a report celebrating involved put together by Parkinson’s UK, and about involvement in the general election campaign at Shelter, and the changes this has led to. A really intersting meeting.

 

Charities Research Involvement Group

Meeting Held 12 March, 2025

Our main discussion topic was ‘keeping people engaged and developing a sense of community’. Thanks to colleagues at Versus Arthritis for sharing their experience. We also heard about agreement Breakthrough T1D is using with researchers who ask for help with involvement and participation.  And from Magenta Research about a project to explore how to make research more inclusive of disabled people.