Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

How to Join

Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 4 February, 2021

Such an interesting and useful meeting – that was the verdict of members who attended.

Our main discussion topic for discussion was supporting involvement at a strategic level. Thanks to colleagues from CF Trust and Shelter for generously sharing experience, lessons learned and resources.

Thanks also to colleagues (young women and staff) at Young Women’s Trust, who talked  about a project to involve young women in fundraising. Inspirational stuff.

And thanks to our Digital Exclusion Working Group for sharing their learning to date.

Charities Research Involvement Group

Meeting Held 7 December, 2020

This meeting saw the launch of new guidance on PPI in lab based research – two of our members, Alzheimer’s Society and Parkinson’s UK, were partners in this, along with the UCLH Biomedical Research Centre. This led to really interesting discussions about how we can support PPI in this type of research. The guidance is here:  https://sites.google.com/parkinsons.org.uk/ppi-in-lab-based-research

We also heard about the plans Versus Arthritis are developing to encourage people to take part in research, and how people affected by arthritis have shaped these.

Plus loads of questions asked (and answered) by members.

Our Members


Charities Research Involvement Group Members

Associate Members