Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 14 April, 2021

Some really inspirational talks at this meeting, from leaders of three organisations:

We focused on the topic of user led organisations, and we heard from three amazing and inspirational people: Akiko Hart, CEO of the National Survivor User Network (NSUN); Chrisann Jarrett, co-CEO of We Belong, an organisation led by young people who migrated to the UK, and James Cusack, CEO of Autistica, the UK’s national autism research charity.

Thanks to all of them.

We also had a great talk about running an involvement audit – thank you Breast Cancer Now.

Some great questions were raised by members and lots of other interesting info was shared in response. Our next topic will be measuring and demonstrating impact in a meaningful way – should be an interesting meeting….


Charities Research Involvement Group

Meeting Held 18 March, 2021

Great discussions about PPI at NICE at this meeting – thanks to Mark Rasburn from NICE for joining us.

Last year a start-up called Egality ran a series of focus groups with CRIG members to assess the current relationship between health research supported by member charities and BAME communities. We had a preview of their report, which we’ll be sharing soon. We’re also setting up a working group to progress this issue.