Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to enable shared learning about the involvement of people with lived experience between charities working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 5 June, 2024

Our main topic for discussion was ‘breadth or depth’ – whether we aim to involve a lot of people with lived experience, but accept that because of the time this takes, the involvement may be at a consultation level, or we involve a few people at a more collaborative level.

Thanks to Anna Moore for sharing her experience of leading an evaluation and feedback session at Bliss.

We heard about the results of our benchmarking exercise – lots of useful info for comparison and learning.

Charities Research Involvement Group

Meeting Held 11 June, 2024

In a meeting packed full of useful info, we heard from colleagues at Alzheimer’s Research UK and LifeArc about the importance of having a strategy for involvement in research, and we looked at policies and processes to help involvement in research to work well.

We also heard from colleagues in Ireland (Health Research Charities Ireland and PPI Ignite) about a template to help to set expectations of agreement between charities and potential partners, and from British Heart Foundation and Versus Arthritis about work to understand what researchers need to help them to involve people with lived experience.