Welcome to the Shared Learning Group on Involvement and Charities Research Involvement Group

We aim to encourage shared learning about service user and carer involvement between voluntary sector organisations working in the UK. Our main Shared Learning Group looks at involvement across all areas. We also have a Charities Research Involvement Group.

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Most of the resources on this website are password protected and accessible to members only. For more information about membership please visit How to join.

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Latest Meeting Summaries

Shared Learning Group on Involvement

Meeting Held 8 June, 2022

Our main agenda item was how to support people to stop being involved. We had really interesting speakers – Derek Stewart (a patient advocate), Nicola Lucey from Mind and Abby Meadows from Turn2Us, as well as some great discussion about this important topic.

Other interesting topics that were raised included involvement in safeguarding; building the number and diversity of people in an involvement network; running a Facebook recruitment campaign; and issues around payment for involvement. More on these at future meetings.


Charities Research Involvement Group

Meeting Held 16 March, 2022

Our main discussion topic was involvement in the peer review process – great presentations from colleagues at Parkinson’s UK, JDRF and Alzheimer’s Society and lots of useful information shared by members. We had a presentation about the new joint statement on embedding public involvement in health and social care research. And we reviewed the results of our latest benchmarking survey.