Resource Keyword: sharing experience ('storytelling')

Resource was added by: Bec Hanley

An increasing number of member organisations from the Shared Learning Group on Involvement and the Charities Research Involvement Group offer payment to people with lived experience in return for helping to shape the work of the organisation. Members have developed payment policies to offer clarity about when and why people with lived experience will be offered payment. However, we recognise that there are some grey areas, particularly where people are asked to share their lived experience. These are sometimes referred to as ‘stories’ or ‘case studies’, although we recognise that both are contested terms.
We are all committed to behaving ethically when it comes to asking people to share their lived experience. We do not want to re-traumatise people, and we do not want to coerce (or be seen to coerce) people into sharing their ‘stories’. So the question about whether to offer payment in this context is challenging.
This paper aims to share information about when and why some Payment Working Group members pay (or don’t pay) people to share their lived experience.
We'll aim to update this in the summer of 2026.

Resource keywords: payment sharing experience ('storytelling')