Resource was added by: Bec Hanley
The pledge is made up of 12 simple steps. The steps outline how people who are organising involvement activities can help and support people with lived experience in a positive, inclusive, and effective way.
Nine basic requirements for meaningful and ethical children’s participation
Resource was added by: Bec Hanley
Guidance to ensure quality involvement in all processes in which children are listened to.
WHO framework for meaningful engagement
Resource was added by: Bec Hanley
This WHO framework for meaningful engagement of people living with noncommunicable diseases,
and mental health and neurological conditions might be useful if you need to reference influential bodies when you're trying to push for meaningful involvement, especially at an international level.
Stopping involvement
Resource was added by: Bec Hanley
In June 2022 the Shared Learning Group on Involvement talked about how to support people with lived experience to stop their involvement. Thanks to Abby Meadows from Turn2us, Nicola Lucey and Angela Slater from Mind and Derek Stewart, a patient advocate, for sharing their experience and prompting really useful discussions amongst members. This paper summarises our discussions.
We've made this paper available publicly, so you can share it widely if you wish.
Involvement and volunteering
Resource was added by: Bec Hanley
This paper reflects the discussions of the Shared Learning Group on Involvement about ‘involvement’, ‘volunteering’ and ‘supporting’. This is a working document that has been (and will continue to be) developed over time...
Involvement and insight – similarities and differences
Resource was added by: Bec Hanley
This paper summarises discussions amongst members of the Heads of Involvement Group about the similarities and differences between involvement and insight. It aims to help members to be clear about how the work of an involvement team (or individual) is distinct from the work of an insight team.
SCIE Barriers to co-production webinar
Resource was added by: Mandy Owens
Earlier this year SCIE ran a webinar about breaking down the barriers to co-production. Here is a link to the presentation.
Positive risk-taking: from rhetoric to reality
Resource was added by: Mandy Owens
A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
Guidelines for involving people affected by asthma in research opportunities
Resource was added by: Bec Hanley
What is this resource?
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must read this guidance and complete a form. Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the website.
Who was it developed by?
Asthma UK (which is now Asthma and Lung UK)
When might it be useful?
Refer to these guidelines if you are looking to promote your service to researchers, outline the conditions of your support or establish 'rules' about your PPI programme.
Service user involvement and co-production
Resource was added by: Bec Hanley
This guide was put together by Clinks, the charity that supports, represents and campaigns for
the voluntary sector working with offenders, ex-offenders and their families.