Resource was added by: Natasha Ratcliffe
This internal guidance was developed by LifeArc to sit alongside their Safeguarding Policy to help colleagues consider what they may need to think about when planning and carrying out patient engagement activities. The guidance does not replace LifeArc's Safeguarding Policy, and does not provide an exhaustive list of considerations.
Safeguarding in the context of involvement
Resource was added by: Bec Hanley
This paper summarises discussions that took place at a workshop to explore the issue of safeguarding in the context of involvement. It was set up by Natasha Ratcliffe from LifeArc and Jessica Bush from Marie Curie, following a question raised by Natasha at a meeting of the Charities Research Involvement Group (CRIG). The workshop was attended by members of the CRIG and the Shared Learning Group on Involvement.
This paper is NOT a guide to safeguarding – there are many resources available if you’re looking for this. Instead, it aims to capture our discussions about safeguarding in an involvement context.
WHO resolution on participation
Resource was added by: Bec Hanley
Useful if you're looking for policy to back up the reuirement for involvent in health, this resultion was made in June 2024.
Peer Power’s guidance on ethical story telling
Resource was added by: Bec Hanley
Useful and short guidance on how to do this ethically.
Inclusive involvement pledge
Resource was added by: Bec Hanley
The pledge is made up of 12 simple steps. The steps outline how people who are organising involvement activities can help and support people with lived experience in a positive, inclusive, and effective way.
Nine basic requirements for meaningful and ethical children’s participation
Resource was added by: Bec Hanley
Guidance to ensure quality involvement in all processes in which children are listened to.
WHO framework for meaningful engagement
Resource was added by: Bec Hanley
This WHO framework for meaningful engagement of people living with noncommunicable diseases,
and mental health and neurological conditions might be useful if you need to reference influential bodies when you're trying to push for meaningful involvement, especially at an international level.
Stopping involvement
Resource was added by: Bec Hanley
In June 2022 the Shared Learning Group on Involvement talked about how to support people with lived experience to stop their involvement. Thanks to Abby Meadows from Turn2us, Nicola Lucey and Angela Slater from Mind and Derek Stewart, a patient advocate, for sharing their experience and prompting really useful discussions amongst members. This paper summarises our discussions.
We've made this paper available publicly, so you can share it widely if you wish.
Involvement and volunteering
Resource was added by: Bec Hanley
This paper reflects the discussions of the Shared Learning Group on Involvement about ‘involvement’, ‘volunteering’ and ‘supporting’. This is a working document that has been (and will continue to be) developed over time...
Involvement and insight – similarities and differences
Resource was added by: Bec Hanley
This paper summarises discussions amongst members of the Heads of Involvement Group about the similarities and differences between involvement and insight. It aims to help members to be clear about how the work of an involvement team (or individual) is distinct from the work of an insight team.