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Guidelines and good practice

You’ll find links to basic information about user involvement (also called patient and public involvement) here.

WHO framework for meaningful engagement

Uploaded: 5th July 2023 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

This WHO framework for meaningful engagement of people living with noncommunicable diseases,
and mental health and neurological conditions might be useful if you need to reference influential bodies when you're trying to push for meaningful involvement, especially at an international level.

Resource keywords: good practice examples policy

Stopping involvement

Uploaded: 25th August 2022 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

In June 2022 the Shared Learning Group on Involvement talked about how to support people with lived experience to stop their involvement. Thanks to Abby Meadows from Turn2us, Nicola Lucey and Angela Slater from Mind and Derek Stewart, a patient advocate, for sharing their experience and prompting really useful discussions amongst members. This paper summarises our discussions.
We've made this paper available publicly, so you can share it widely if you wish.

Resource keywords: challenges feedback

Involvement and insight – similarities and differences

Uploaded: 13th July 2021 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

This paper summarises discussions amongst members of the Heads of Involvement Group about the similarities and differences between involvement and insight. It aims to help members to be clear about how the work of an involvement team (or individual) is distinct from the work of an insight team.

Resource keywords: definitions

Positive risk-taking: from rhetoric to reality

Uploaded: 17th April 2018 | Topic: Guidelines and good practice

Resource was added by: Mandy Owens

A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.

Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.

Resource keywords: challenges diversity and inclusion good practice examples toolkit

Guidelines for involving people affected by asthma in research opportunities

Uploaded: 6th October 2017 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

What is this resource?
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must read this guidance and complete a form. Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the website.

Who was it developed by?
Asthma UK (which is now Asthma and Lung UK)

When might it be useful?
Refer to these guidelines if you are looking to promote your service to researchers, outline the conditions of your support or establish 'rules' about your PPI programme.

Resource keywords: good practice examples payment policy recruiting service users social media