Resource was added by: Bec Hanley
This guide is about turning the ideas of equality, diversity, and inclusion (EDI) into practical action. Published by health Research Charities Ireland (a CRIG member organisation), the aim is to move beyond theory and show what you can actually do to make involvement in research more welcoming and enjoyable for everyone.
Inclusion by design: How to address structural and cultural barriers to PPIE in academic research
Resource was added by: Bec Hanley
This report was produced by Genetic Alliance UK, in collaboration with Rare Disease Research UK and the LifeArc Translational Centres for Rare Disease. The report explores why patient and public involvement and engagement (PPIE) remains difficult to deliver meaningfully in academic research and draws on insights from researchers at different career stages to set out eight practical recommendations for systems-level change. While grounded in rare disease research, the findings are relevant across biomedical and healthcare research, combining longer-term priorities with practical ‘quick wins’ to help embed more inclusive research practices.
Involving minoritised communities in research
Resource was added by: Bec Hanley
Here's a recording of a webinar led by Diabetes UK, where they talk about thir experience of involving different minoritised communities in research supported by the charity.
Inclusion a condition for NIHR funding
Resource was added by: Bec Hanley
What is this resource?
This is the announcement from the NIHR giving info about how inclusion is now a key requirement for NIHR funding.
Who was it developed by?
NIHR
When might it be useful?
If you are looking to persuade senior leaders or researchers about the impotance of considering diversity in research.
Working towards race equality in research at Parkinson’s UK
Resource was added by: Bec Hanley
What is this resource?
A blog about work that has been done by Parkinson's UK to promote race equality in research.
Who was it developed by?
Parkinson's UK
When might it be useful?
A really sueful summary of the work that Parkinson's Uk has done to date - full of ideas and links if you're thinking about promoting diversity in research - not just in involvement.
Resource was added by: Bec Hanley
We know that diverse ethnic groups are under-represented in health research, which can mean healthcare treatments and services are less safe, accessible, and effective for these groups.
To address this, CRIG worked with 7 member charities, 2 community organisations, 8 people with lived experience and Egality to co-produce an awareness raising film.
Our collective aim is to increase the number of people with lived experience from diverse ethnic groups who are actively involved in health research and ultimately improve health treatments and services. The spoken word film focuses on why diversity in PPI and in health research matters for people, families, and communities.
Any CRIG member can adapt this film for thier own use - please contact Bec for more information.
Connecting with Black Communities
Resource was added by: Bec Hanley
What is this resource?
This report summarises the findings of a project to gain insights into why people from black communities do not engage in Crohn’s & Colitis research. The report includes recommendations to increase engagement with Black communities.
Who was it developed by?
This report shares the findings from a project commissioned by Crohn’s & Colitis UK and carried out by ClearView Research.
When might it be useful?
Refer to this resource for ideas and suggestions if you are trying to engage Black communities in research.
EDI toolkit for researchers
Resource was added by: Bec Hanley
What is this resource?
This toolkit aims to help researchers to understand EDI issues relevant to research. It contains a set of practical resources to help researchers engage with EDI issues in their projects and to create inclusive teams to deliver research.
Who was it developed by?
Newcastle University.
When might it be useful?
Use the resources in the toolkit when making EDI plans in research and refer researchers to it to support their work.
Socioeconomic barriers to participation in research – Trial Forge framework
Resource was added by: Bec Hanley
What is this resource?
This framework has been designed to aid researchers, who are designing clinical trials, to consider barriers to including patients from socioeconomically disadvantaged backgrounds in their trials. The framework can also help researchers to develop strategies to attempt to address such barriers in order to improve the design and conduct of clinical research.
Who was it developed by?
Trial Forge, with funding from the University of Liverpool and the NIHR.
When might it be useful?
This resource is useful in the planning and design of clinical trials and to direct researchers to.
How to talk about PPI in an accessible way – CRIG and Egality paper
Resource was added by: Bec Hanley
What is this resource?
This guide summarises the discussions and learnings from a CRIG meeting with Egality and ‘community connectors’ about the challenges of explaining what involvement is to people who are new to research and PPI.
Who was it developed by?
CRIG members, Egality and community connectors.
When might it be useful?
Use these learnings when you are communicating about involvement in research, setting up a PPI network or refreshing comms about PPI.