Resource was added by: Bec Hanley
What is this resource?
This is the announcement from the NIHR giving info about how inclusion is now a key requirement for NIHR funding.
Who was it developed by?
NIHR
When might it be useful?
If you are looking to persuade senior leaders or researchers about the impotance of considering diversity in research.
Working towards race equality in research at Parkinson’s UK
Resource was added by: Bec Hanley
What is this resource?
A blog about work that has been done by Parkinson's UK to promote race equality in research.
Who was it developed by?
Parkinson's UK
When might it be useful?
A really sueful summary of the work that Parkinson's Uk has done to date - full of ideas and links if you're thinking about promoting diversity in research - not just in involvement.
Resource was added by: Bec Hanley
We know that diverse ethnic groups are under-represented in health research, which can mean healthcare treatments and services are less safe, accessible, and effective for these groups.
To address this, CRIG worked with 7 member charities, 2 community organisations, 8 people with lived experience and Egality to co-produce an awareness raising film.
Our collective aim is to increase the number of people with lived experience from diverse ethnic groups who are actively involved in health research and ultimately improve health treatments and services. The spoken word film focuses on why diversity in PPI and in health research matters for people, families, and communities.
Any CRIG member can adapt this film for thier own use - please contact Bec for more information.
Connecting with Black Communities
Resource was added by: Bec Hanley
What is this resource?
This report summarises the findings of a project to gain insights into why people from black communities do not engage in Crohn’s & Colitis research. The report includes recommendations to increase engagement with Black communities.
Who was it developed by?
This report shares the findings from a project commissioned by Crohn’s & Colitis UK and carried out by ClearView Research.
When might it be useful?
Refer to this resource for ideas and suggestions if you are trying to engage Black communities in research.
EDI toolkit for researchers
Resource was added by: Bec Hanley
What is this resource?
This toolkit aims to help researchers to understand EDI issues relevant to research. It contains a set of practical resources to help researchers engage with EDI issues in their projects and to create inclusive teams to deliver research.
Who was it developed by?
Newcastle University.
When might it be useful?
Use the resources in the toolkit when making EDI plans in research and refer researchers to it to support their work.
Socioeconomic barriers to participation in research – Trial Forge framework
Resource was added by: Bec Hanley
What is this resource?
This framework has been designed to aid researchers, who are designing clinical trials, to consider barriers to including patients from socioeconomically disadvantaged backgrounds in their trials. The framework can also help researchers to develop strategies to attempt to address such barriers in order to improve the design and conduct of clinical research.
Who was it developed by?
Trial Forge, with funding from the University of Liverpool and the NIHR.
When might it be useful?
This resource is useful in the planning and design of clinical trials and to direct researchers to.
How to talk about PPI in an accessible way – CRIG and Egality paper
Resource was added by: Bec Hanley
What is this resource?
This guide summarises the discussions and learnings from a CRIG meeting with Egality and ‘community connectors’ about the challenges of explaining what involvement is to people who are new to research and PPI.
Who was it developed by?
CRIG members, Egality and community connectors.
When might it be useful?
Use these learnings when you are communicating about involvement in research, setting up a PPI network or refreshing comms about PPI.
Improving diversity in research – Egality workshop recording
Resource was added by: Bec Hanley
What is this resource?
Recording of a workshop for CRIG members to explore how we might improve the diversity of people are involved in research. This was held on 20th August 2021.
Passcode: !f4@QFZ=
Who was it developed by?
Egality and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks.
Improving the way we communicate about PPI – English Unlocked workshop
Resource was added by: Bec Hanley
What is this resource?
A recording of a workshop to look at writing in plain English to encourage involvement of people whose first language is not English. This workshop was part of a broader session looking at improving diversity of involvement in health research, held on 20th August 2021.
Password: !f9l5S33
Who was it developed by?
English Unlocked and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks or communicating about involvement in research.
Reflections from the pandemic on inequalilties and PPI – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in Health Expectations journal reflecting on the changes in PPI practice resulting from the pandemic. They explore PPI through an inequalities lens and suggest a more rigorous review of PPIE practice is necessary to widen involvement in research.
Who was it developed by?
The paper was written by Michael Clark, Esther van Vliet and Michelle Collins
When might it be useful?
Read the paper when reviewing PPI methods and practices within your organisation.