Resource was added by: Bec Hanley
What is this resource?
This report summarises the findings of a project to gain insights into why people from black communities do not engage in Crohn’s & Colitis research. The report includes recommendations to increase engagement with Black communities.
Who was it developed by?
This report shares the findings from a project commissioned by Crohn’s & Colitis UK and carried out by ClearView Research.
When might it be useful?
Refer to this resource for ideas and suggestions if you are trying to engage Black communities in research.
EDI toolkit for researchers
Resource was added by: Bec Hanley
What is this resource?
This toolkit aims to help researchers to understand EDI issues relevant to research. It contains a set of practical resources to help researchers engage with EDI issues in their projects and to create inclusive teams to deliver research.
Who was it developed by?
Newcastle University.
When might it be useful?
Use the resources in the toolkit when making EDI plans in research and refer researchers to it to support their work.
Socioeconomic barriers to participation in research – Trial Forge framework
Resource was added by: Bec Hanley
What is this resource?
This framework has been designed to aid researchers, who are designing clinical trials, to consider barriers to including patients from socioeconomically disadvantaged backgrounds in their trials. The framework can also help researchers to develop strategies to attempt to address such barriers in order to improve the design and conduct of clinical research.
Who was it developed by?
Trial Forge, with funding from the University of Liverpool and the NIHR.
When might it be useful?
This resource is useful in the planning and design of clinical trials and to direct researchers to.
How to talk about PPI in an accessible way – CRIG and Egality paper
Resource was added by: Bec Hanley
What is this resource?
This guide summarises the discussions and learnings from a CRIG meeting with Egality and ‘community connectors’ about the challenges of explaining what involvement is to people who are new to research and PPI.
Who was it developed by?
CRIG members, Egality and community connectors.
When might it be useful?
Use these learnings when you are communicating about involvement in research, setting up a PPI network or refreshing comms about PPI.
Running hybrid involvement meetings
Resource was added by: Bec Hanley
Hybrid involvement meetings (i.e. meetings that run virtually and in person at the same time) can be a good way to enable the inclusion and involvement of those who face barriers to attending a meeting in person, or who feel more comfortable joining remotely.
Here are soem top tips on running hybrid involvemnt meetings from five Shared Learning Group members who have run them.
Improving diversity in research – Egality workshop recording
Resource was added by: Bec Hanley
What is this resource?
Recording of a workshop for CRIG members to explore how we might improve the diversity of people are involved in research. This was held on 20th August 2021.
Passcode: !f4@QFZ=
Who was it developed by?
Egality and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks.
Improving the way we communicate about PPI – English Unlocked workshop
Resource was added by: Bec Hanley
What is this resource?
A recording of a workshop to look at writing in plain English to encourage involvement of people whose first language is not English. This workshop was part of a broader session looking at improving diversity of involvement in health research, held on 20th August 2021.
Password: !f9l5S33
Who was it developed by?
English Unlocked and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks or communicating about involvement in research.
Reflections from the pandemic on inequalilties and PPI – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in Health Expectations journal reflecting on the changes in PPI practice resulting from the pandemic. They explore PPI through an inequalities lens and suggest a more rigorous review of PPIE practice is necessary to widen involvement in research.
Who was it developed by?
The paper was written by Michael Clark, Esther van Vliet and Michelle Collins
When might it be useful?
Read the paper when reviewing PPI methods and practices within your organisation.
Tackling digital inclusion
Resource was added by: Bec Hanley
Useful very short (2 pages) report on addressing digital inclusion. Aimed at NHS Trust boards but a useful read for anyone
Nine Basic Requirements for Meaningful and Ethical Child Participation
Resource was added by: Bec Hanley
Save the Children has published a new and updated version of the Nine Basic Requirements for Meaningful and Ethical Child Participation. This is a key tool to guarantee high-quality child participation and will help to advance children’s participation rights in any initiatives with children. The Guide has evolved for over two decades and is based on what children have shared with adults over the course of many years. The material includes checklists and basic tools and is presented in an easy-to-read, colorful manner.
The guide is also available in French, Spanish and Arabic .
Also included within the tools is a preliminary set of ‘mini guides’ related to:
• Planning events with children
• Moderating events with children