Resource was added by: Bec Hanley
We know that diverse ethnic groups are under-represented in health research, which can mean healthcare treatments and services are less safe, accessible, and effective for these groups.
To address this, CRIG worked with 7 member charities, 2 community organisations, 8 people with lived experience and Egality to co-produce an awareness raising film.
Our collective aim is to increase the number of people with lived experience from diverse ethnic groups who are actively involved in health research and ultimately improve health treatments and services. The spoken word film focuses on why diversity in PPI and in health research matters for people, families, and communities.
Any CRIG member can adapt this film for thier own use - please contact Bec for more information.
Increasing equity, diversity and inclusion in patient and public involvement and engagement for policy research by listening to and learning from under-represented groups
Resource was added by: Bec Hanley
Paper in the journal Research Involvemnt and Engagement (it's open access)
Inclusive involvement pledge
Resource was added by: Bec Hanley
The pledge is made up of 12 simple steps. The steps outline how people who are organising involvement activities can help and support people with lived experience in a positive, inclusive, and effective way.
Connecting with Black Communities
Resource was added by: Bec Hanley
What is this resource?
This report summarises the findings of a project to gain insights into why people from black communities do not engage in Crohn’s & Colitis research. The report includes recommendations to increase engagement with Black communities.
Who was it developed by?
This report shares the findings from a project commissioned by Crohn’s & Colitis UK and carried out by ClearView Research.
When might it be useful?
Refer to this resource for ideas and suggestions if you are trying to engage Black communities in research.
EDI toolkit for researchers
Resource was added by: Bec Hanley
What is this resource?
This toolkit aims to help researchers to understand EDI issues relevant to research. It contains a set of practical resources to help researchers engage with EDI issues in their projects and to create inclusive teams to deliver research.
Who was it developed by?
Newcastle University.
When might it be useful?
Use the resources in the toolkit when making EDI plans in research and refer researchers to it to support their work.
Socioeconomic barriers to participation in research – Trial Forge framework
Resource was added by: Bec Hanley
What is this resource?
This framework has been designed to aid researchers, who are designing clinical trials, to consider barriers to including patients from socioeconomically disadvantaged backgrounds in their trials. The framework can also help researchers to develop strategies to attempt to address such barriers in order to improve the design and conduct of clinical research.
Who was it developed by?
Trial Forge, with funding from the University of Liverpool and the NIHR.
When might it be useful?
This resource is useful in the planning and design of clinical trials and to direct researchers to.
How to talk about PPI in an accessible way – CRIG and Egality paper
Resource was added by: Bec Hanley
What is this resource?
This guide summarises the discussions and learnings from a CRIG meeting with Egality and ‘community connectors’ about the challenges of explaining what involvement is to people who are new to research and PPI.
Who was it developed by?
CRIG members, Egality and community connectors.
When might it be useful?
Use these learnings when you are communicating about involvement in research, setting up a PPI network or refreshing comms about PPI.
Running hybrid involvement meetings
Resource was added by: Bec Hanley
Hybrid involvement meetings (i.e. meetings that run virtually and in person at the same time) can be a good way to enable the inclusion and involvement of those who face barriers to attending a meeting in person, or who feel more comfortable joining remotely.
Here are soem top tips on running hybrid involvemnt meetings from five Shared Learning Group members who have run them.
Improving diversity in research – Egality workshop recording
Resource was added by: Bec Hanley
What is this resource?
Recording of a workshop for CRIG members to explore how we might improve the diversity of people are involved in research. This was held on 20th August 2021.
Passcode: !f4@QFZ=
Who was it developed by?
Egality and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks.
Improving the way we communicate about PPI – English Unlocked workshop
Resource was added by: Bec Hanley
What is this resource?
A recording of a workshop to look at writing in plain English to encourage involvement of people whose first language is not English. This workshop was part of a broader session looking at improving diversity of involvement in health research, held on 20th August 2021.
Password: !f9l5S33
Who was it developed by?
English Unlocked and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks or communicating about involvement in research.