Resource was added by: Bec Hanley
What is this resource?
This reportexplores how funders can improve partnerships between community organisations and academics in the research they support. It combines existing guidance with interviews and focus groups with community representatives, academic researchers and funders.
Who was it developed by?
Pete Fleischmann for the Vivensa Foundation
When might it be useful?
If you'e thinking about building links with community organisations.
A Friendly Guide to Equality, Diversity & Inclusion (EDI) in Public and Patient Involvement (PPI)
Resource was added by: Bec Hanley
This guide is about turning the ideas of equality, diversity, and inclusion (EDI) into practical action. Published by health Research Charities Ireland (a CRIG member organisation), the aim is to move beyond theory and show what you can actually do to make involvement in research more welcoming and enjoyable for everyone.
Inclusion by design: How to address structural and cultural barriers to PPIE in academic research
Resource was added by: Bec Hanley
This report was produced by Genetic Alliance UK, in collaboration with Rare Disease Research UK and the LifeArc Translational Centres for Rare Disease. The report explores why patient and public involvement and engagement (PPIE) remains difficult to deliver meaningfully in academic research and draws on insights from researchers at different career stages to set out eight practical recommendations for systems-level change. While grounded in rare disease research, the findings are relevant across biomedical and healthcare research, combining longer-term priorities with practical ‘quick wins’ to help embed more inclusive research practices.
Improving the volunteer experience through inclusion
Resource was added by: Bec Hanley
This toolkit aims to help create a better volunteering experience through implementing Equality, Diversity, and Inclusion practices in volunteering contexts. It provides guidance on how to leverage the voices and insights of volunteers to co- produce solutions to progress EDI work.
Although focused on volunteering, it's equally relevant for involvement activity.
Involving minoritised communities in research
Resource was added by: Bec Hanley
Here's a recording of a webinar led by Diabetes UK, where they talk about thir experience of involving different minoritised communities in research supported by the charity.
Inclusion a condition for NIHR funding
Resource was added by: Bec Hanley
What is this resource?
This is the announcement from the NIHR giving info about how inclusion is now a key requirement for NIHR funding.
Who was it developed by?
NIHR
When might it be useful?
If you are looking to persuade senior leaders or researchers about the impotance of considering diversity in research.
Working towards race equality in research at Parkinson’s UK
Resource was added by: Bec Hanley
What is this resource?
A blog about work that has been done by Parkinson's UK to promote race equality in research.
Who was it developed by?
Parkinson's UK
When might it be useful?
A really sueful summary of the work that Parkinson's Uk has done to date - full of ideas and links if you're thinking about promoting diversity in research - not just in involvement.
Resource was added by: Bec Hanley
We know that diverse ethnic groups are under-represented in health research, which can mean healthcare treatments and services are less safe, accessible, and effective for these groups.
To address this, CRIG worked with 7 member charities, 2 community organisations, 8 people with lived experience and Egality to co-produce an awareness raising film.
Our collective aim is to increase the number of people with lived experience from diverse ethnic groups who are actively involved in health research and ultimately improve health treatments and services. The spoken word film focuses on why diversity in PPI and in health research matters for people, families, and communities.
Any CRIG member can adapt this film for thier own use - please contact Bec for more information.
Increasing equity, diversity and inclusion in patient and public involvement and engagement for policy research by listening to and learning from under-represented groups
Resource was added by: Bec Hanley
Paper in the journal Research Involvemnt and Engagement (it's open access)
Inclusive involvement pledge
Resource was added by: Bec Hanley
The pledge is made up of 12 simple steps. The steps outline how people who are organising involvement activities can help and support people with lived experience in a positive, inclusive, and effective way.