Resource was added by: Ben Morrison
As part of a project at Breast Cancer Now, we wanted to gather some insights into if and how other funders are incorporating involvement into their research funding activities.
We did this by creating a brief survey covering (among other things):
- If people with lived experience (PLE) are involved in research funding activities
- How PLE are involved
- How PLE are recruited and trained/guided/supported
- How grant applicants are trained/guided/supported
- Payment policies
- Impact evaluation
- Challenges
22 CRIG members, who fund research, were kind enough to complete the survey and agreed for their responses to be shared with the network. Attached is a spreadsheet containing the survey questions and responses received.
Barnardo’s Voice and Influence Approach and Framework
Resource was added by: Bec Hanley
This covers 2024-2027, and is deliberately not a 'strategy'. The focus is on how the work will be done. Thanks to Josh Harsant for sharing this.
Alzheimer’s Research UK involvement strategy
Resource was added by: Bec Hanley
Here's an executive summary of the strategy. Thanks to Joann Leeding for sharing this. There's a presentation about the development of this in the notes of the Charities Research Involvement Group meeting on 11th June 2024.
Lived experience theory of change
Resource was added by: Bec Hanley
Developed by Breast Cancer Now - thanks to Susanna Glover for sharing this. Useful if you are develping an involvement strategy or thinking about impact.
Breast Cancer Now’s Patient Involvemnt Strategy
Resource was added by: Bec Hanley
Useful document to look at for inspiration if you are developing an involvement startegy.
Barnardo’s Voice and Influence Strategy
Resource was added by: Bec Hanley
Thanks to Josh Harsant for sharing this.
Caring Together’s carer involvement plan
Resource was added by: Bec Hanley
Here's Caring Together's arer involvement plan. Thanks to Andy McGowan for sharing this.
St Mungo’s involvement strategy
Resource was added by: Bec Hanley
Here it is. There's a presentation from Alice Moore on how this was developed in the meeting log for 9th February 2022.
Anthony Nolan Trust Community Involvement Strategy
Resource was added by: Bec Hanley
Really nice example of an involvement strategy. Thank to Chiara for sharing it.
Developing a PPI strategy – a guide
Resource was added by: Bec Hanley
Guidance from the Health Research Charities Ireland on how to develop an involvement strategy. It's aimed at organisations with a focus on health research but could easily be adapted by others.
Thanks to Avril Kennan at HRCI for sharing this and to the CRIG members who helped develop it.