Resource was added by: Bec Hanley
Gemma Altinger has shared this, but asks that THIS IS NOT SHARED. Please contact Gemma at CRUK if you want to share this policy. Gemma says that they will be doing more work around what CRUK's responsibilities will be with payments for people on benefits so the attached will be updated. She'll keep the SLG posted.
Autistica’s Involvement Promise
Resource was added by: Bethan Davies
Autistica's Involvement Promise (strategy) January 2018.
Guidelines for involving people affected by asthma in research opportunities
Resource was added by: Bec Hanley
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must complete this form. Note there is an associated document "Application form for researchers wishing to involve people with asthma in research". Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the Asthma UK website.
Application form for researchers wishing to involve people with asthma in research
Resource was added by: Bec Hanley
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must complete this form. Note there is an associated document "Guidelines for involving people affected by asthma in research opportunities". Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the Asthma UK website.
Payment policies
Resource was added by: Bec Hanley
3 member organisations share their policies on payment - for use by members only.
Revolving Doors – user involvement guide
Resource was added by: Bec Hanley
A guide for organisations working with offenders, ex-offenders and their families, but very transferable to involvement with other groups of people.
Alzheimer’s Society’s user involvement policy
Resource was added by: Bec Hanley
This policy on user involvement was developed by the Alzheimer's Society and is for members' use only. It's quite old now but is still felt to be useful.
Policies to support service user involvement
Resource was added by: Bec Hanley
Updated shared practice paper on the policies member organisations feel it is helpful to have in place to support service user and carer involvement. This was written in 2013 so is quite old, but is still felt to be useful.
Marie Curie’s User Involvement Policy
Resource was added by: Bec Hanley
Supporting service users to get involved outside your own organisation
Resource was added by: Bec Hanley
This paper aims to share our experience of deciding whether and how to promote involvement opportunities outside our own organisations (e.g. opportunities for people to get involved in groups set up by NHS organisations), and how to support service users who choose to get involved in this way. It's old but still felt to be relevant.