Resource was added by: Bec Hanley
Link to info about evaluation of the impact of young people's involvement in a large scale project - this included publication of various useful resources.
Public Involvement in Research Impact Toolkit
Resource was added by: Bec Hanley
What is this resource?
This toolkit is a set of tools aiming to support researchers to plan and integrate public involvement in research, track public contributions and the difference they make and report impact against the National Standards for Public Involvement.
Who was it developed by?
This toolkit was developed by the Marie Curie Research Centre and Cardiff University.
When might it be useful?
This resource can be shared with researchers to support them to capture the impact of their involvement activities. It may also be used by charities to record internal involvement activities.
Exploring impact workshop, February 2023
Resource was added by: Bec Hanley
In February 2023 the Shared Learning Group held a workshop on capturing the impact of involvement. More information here.
Methods for capturing impact of involvement in research – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in the journal Research Involvement and Engagement that explores the different methods used to capture the impact of involvement in research.
Who was it developed by?
The paper was written by Anmol Shahid, Inara N. Lalani, Brianna K. Rosgen, Bonnie G, Shelly Longmore, Jeanna Parsons Leigh, Henry T. Stelfox and Kirsten M. Fiest.
When might it be useful?
Refer to this resource when developing ways to capture the impact of involvement activities that you support.
Impact of PPI on the UK coronavirus immunology consortium
Resource was added by: Bec Hanley
What is this resource?
This report celebrates and showcases the positive impact of involving patients and the public in immunology research.
Who was it developed by?
The UK Coronavirus Immunology Consortium and the British Society for Immunology.
When might it be useful?
Useful reading if you’re working on PPI methods or capturing and sharing the impact of involvement.
Terrence Higgins Trust evaluation report
Resource was added by: Bec Hanley
A report on the evaluation of invovlent work undertake at Terrence Higgins Trust as part of a three year Lottery funded programme.
The value of PPI in research for charities – CRIG paper
Resource was added by: Bec Hanley
What is this resource?
This CRIG paper looks at how involvement in research adds value for the charities that fund and support research (rather than to the research/researchers).
Note that this version of the report is for members only. There’s a public version of this report in the news section on our home page.
Who was it developed by?
CRIG paper - thanks to Cat Harvey and Laura Piercy.
When might it be useful?
Use this paper if advocating for the importance of involvement in research (and staff and resources to support it), for example with internal staff or senior leadership.
RNIB involvement impact report
Resource was added by: Bec Hanley
RNIB's report on how involvement has had an impact. Thanks to Nat Swiderska for sharing this.
Breast Cancer Now involvement impact report
Resource was added by: Bec Hanley
Report from Breast Cancer Now about the impact of their Insight and Experience Panel.
PPI in the development of core outcome sets
Resource was added by: Bec Hanley
What is this resource?
This film explains what core outcome sets (COS) are, why they are important, and how patients and the public are involved in developing COS.
Who was it developed by?
The COMET initiative.
When might it be useful?
Read and refer to this when working on developing COS. You can also refer PPI members to this resource if they are involved in COS projects.