Resource was added by: Bec Hanley
This guidance aims to help charities to calculate fair payment for contributions to projects or partnerships.
This initiative was led by the CRIG, along with Cancer52, Health Research Charities Ireland, National Rheumatoid Arthritis Society and the Patient Information Forum and was the result of consultation with CRIG members as well as a range of other charities and partner organisations.
The guidance can be used when working with pharma, but also with a range of other potential partner organisations in the private and public sector.
Guidance for recognising ‘ineligible’ involvement
Resource was added by: Bec Hanley
This guidance was produced by Health and Care Research Wales to address the (rare) issue of people claiming payment for an involvement activity that they are not entitled to, because they do not have the relevant lived experience.
Does payment change the dynamics of involvement?
Resource was added by: Bec Hanley
What is this resource?
Information pulled together in response to a Payment Working Group meeting where this question was discussed.
Who was it developed by?
Susanna Glover of Breast Cancer Now.
When might it be useful?
If you're putting together a case for payment for involvement for senior leaders, or if you're just interested in this topic.
HRCI payment policy
Resource was added by: Bec Hanley
Thanks to Health Research Charities Ireland for sharing thier payment policy. This is seen by HRCI as a is a ‘living document’ and will change in response to any guidance from stakeholders, including revenue and social welfare.
UCL Co-production Collective payment policy
Resource was added by: Bec Hanley
This policy was co-produced and published in October 2022.
Marie Curie survey on reward and recognition
Resource was added by: Bec Hanley
Survey run by Marie Curie to ask people for thier views on reward and recognition
Payment for Public Involvement
Resource was added by: Bec Hanley
Guidance published by the National Institute for Health Research which aims to:
- Describe principles of payment and key challenges currently faced in the sector relating to managing and administering payments
- Give direction to those managing and administering payment arrangements to navigate employment status and tax regulations in an appropriate way
- Provide information and links to the most appropriate HMRC guidance
5 Nations project on payment for involvement
Resource was added by: Bec Hanley
An update from the 5 nations working group that is looking at payment for involvement. The Shared Learning Group is represented on this group by Suki Westmore and Katie Gleeson.
Payment for involvement
Resource was added by: Bec Hanley
In 2021/22, members from three member charities - Cancer Research UK, Mind and Turn2us – shared their experience of paying people at a series of seminars. This paper is a summary of these seminars. It looks long - but that's because there are lots of useful resources at the end (e.g. payment policies and processes).
Guidance on payment for involvement
Resource was added by: Bec Hanley
Helpful guidance by Co-Create on payment for involvement