Resource was added by: Bec Hanley
A really interesting report from the Social Change Agency about how digital campaigning can disenfranchise those with lived experience. Comes with a toolkit to try to address this.
Guidelines for involving people affected by asthma in research opportunities
Resource was added by: Bec Hanley
What is this resource?
Researchers wanting to involve Asthma UK's Research and Policy volunteers in their studies must read this guidance and complete a form. Approved studies will generally then be posted on the Research and Policy monthly Bulletin and social media, or in some cases on the website.
Who was it developed by?
Asthma UK (which is now Asthma and Lung UK)
When might it be useful?
Refer to these guidelines if you are looking to promote your service to researchers, outline the conditions of your support or establish 'rules' about your PPI programme.
Shared practice: Using social media to involve people
Resource was added by: Bec Hanley
Tips on using Twitter, Facebook and other social media tools to involve people.