Resource was added by: Luci O'Reilly
Created by Generation R Alliance/eYPAGnet, this Toolkit will help you set up and run a Young Persons Advisory Group, allowing the voices of children and young people to be heard in research.
Includes useful documents and resources to support YP engagement in research involvement
Training and learning for PPI members – what CRIG members are doing
Resource was added by: Bec Hanley
This grid outlines what CRIG members have on offer in terms of training for Patient and Public Involvement (PPI) representatives/members. The grid does not list training for researchers. It is broken down into different categories and has sections for people who are new to PPI and those who are more experienced. It is a resource for CRIG members who may be looking to develop training for the PPI representatives involved in their work and who want to see if there are any existing resources that can be adapted, or for those looking to provide training and want to see if there is anything that already exists that would be suitable. If you would like to use one of the training resources below, please ensure that you let the relevant contact know before doing so.
For this to be a useful resource, we ask that all CRIG members add training that their organisations have available to this grid.
Toolkit for research charities to begin a PPI relationship
Resource was added by: Bec Hanley
A toolkit to help research charities plan for a first involvement meeting with patients and carers. Developer by Health Research charities Ireland and Trinity College Dublin.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that has been put together by a range of organisations.
Dementia Experience Toolkit
Resource was added by: Bec Hanley
Great resource co-produced by the Alzheimer's Society and people living with dementia. Useful if you're working with people with a range of conditions.
CRUK patient involvement toolkit for researchers
Resource was added by: Bec Hanley
This online toolkit provides guidance, tips and templates to help researchers to plan, deliver and evaluate patient involvement.
Digital campaigning and the voices of people with lived experience
Resource was added by: Bec Hanley
A really interesting report from the Social Change Agency about how digital campaigning can disenfranchise those with lived experience. Comes with a toolkit to try to address this.
Positive risk-taking: from rhetoric to reality
Resource was added by: Natalie Swiderska
A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
CRUK’s toolkit for researchers
Resource was added by: Bec Hanley
Use this link to access Cancer Research UK's toolkit for researchers.
Mind’s Influence and Participation toolkit
Resource was added by: Bec Hanley
Link is here - thanks to Suki for sharing this.