Resource was added by: Bec Hanley
A toolkit to help research charities plan for a first involvement meeting with patients and carers. Developer by Health Research charities Ireland and Trinity College Dublin.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that ahs bene put together by a range of organisations.
Dementia Experience Toolkit
Resource was added by: Bec Hanley
Great resource co-produced by the Alzheimer's Society and people living with dementia. Useful if you're working with people with a range of conditions.
CRUK patient involvement toolkit for researchers
Resource was added by: Bec Hanley
This online toolkit provides guidance, tips and templates to help researchers to plan, deliver and evaluate patient involvement.
Digital campaigning and the voices of people with lived experience
Resource was added by: Bec Hanley
A really interesting report from the Social Change Agency about how digital campaigning can disenfranchise those with lived experience. Comes with a toolkit to try to address this.
Positive risk-taking: from rhetoric to reality
Resource was added by: Natalie Swiderska
A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
CRUK’s toolkit for researchers
Resource was added by: Bec Hanley
Use this link to access Cancer Research UK's toolkit for researchers.
Mind’s Influence and Participation toolkit
Resource was added by: Bec Hanley
Link is here - thanks to Suki for sharing this.
Service user involvement and co-production
Resource was added by: Bec Hanley
This guide was put together by Clinks, the charity that supports, represents and campaigns for
the voluntary sector working with offenders, ex-offenders and their families.
Action for Blind People – co-production and involvement toolkit
Resource was added by: Bec Hanley
Thanks to Paul Rymer for sharing Action's co-production and involvement toolkit. This is for use by members only.
Whilst this toolkit is updated (Action is now part of RNIB) it is still considered to be useful. Natalie Swiderska is working on an updated version of the toolkit for RNIB and will add this to the website when it is published.