Resource was added by: Bec Hanley
A toolkit to help research charities plan for a first involvement meeting with patients and carers. Developer by Health Research charities Ireland and Trinity College Dublin.
Guidance for researchers about involvement
Resource was added by: Bec Hanley
Thanks to Heather Cooper for compiling this list of guidance for researchers about PPI that ahs bene put together by a range of organisations.
Induction for people who get involved
Resource was added by: Bec Hanley
What information do you send people who express an interest?
How do you ‘induct’ people when they first agree to get involved?
We talked about these questions at our meeting in August 2019. Answers in this paper.
e-learning template to train staff about involvement
Resource was added by: Bec Hanley
Shared Learning Group members have created a fabulous PowerPoint template that you can adapt to train staff about involvement. You could use it on your organisation's online training platform or just send staff the PowerPoint slides - it's up to you.
The slide set is too big to add to the website, so if you'd like a copy please contact Bec - bec.hanley@gmail.com
We also have a version that is more accessible for people with a visual impairment - again contact Bec if you'd like a copy of this.
Current affairs – shared by Laura Elliot, Pancreatic Cancer UK
Resource was added by: Bec Hanley
Local elections are coming up next week! Imagine you are standing for election – for our introduction exercise today, I’d like you to think of two pledges you would include in your manifesto to win over the voters. One of your ideas should be practical and deliverable, but the other can be completely blue-sky, dream-world, no-constraints fabulous. Discuss on your tables, and then we’ll share some of your manifesto ideas with the group.
Collage exercise – shared by Bethany Bateman, British Lung Foundation
Resource was added by: Bec Hanley
This can be a great ice-breaker but doubles up as a way of getting people to think differently about a topic.
You will need:
• Flip chart paper
• Magazines, newspapers and health information/literature about your charity (the latter two are useful as they will have topical words and images that may be relevant)
• Glue sticks
Before people arrive, pick one or two topics and write them on flip chart paper
• This could just be “me”, “my condition” or “health” if all you want is an ice-breaker
• You could also pick a topic that you’ll cover later in the day, eg. “prevention”, “diagnosis”, “hospital care”, etc
As people arrive, ask them to start ripping images, sentences, headlines, etc out of the newspapers and magazines, that they think are relevant to the topics on the flipchart paper.
Ask them to glue the things they’ve cut out to the relevant topic.
About 10 minutes before the end of your allotted time, ask the delegates to look at the collages with you and start to share why they made those choices
If I have chosen a topic that we’ll cover later in the day, save discussion of that collage until you’re ready to start on that topic. I ask people to volunteer their comments but also ask:
• Is there anything on the collage, that they didn’t put up there, that they like?
• What does that mean to them?
• Is it the same thing that the person who put it on there was thinking?
By thinking about other people ideas and discussing what may be a different meaning behind those images / sentences, it gets people thinking more creatively and more about the “big picture”.
Things you have in common – shared by Jenny Robertson, MS Society
Resource was added by: Bec Hanley
On your tables, identify as many things that you all have in common as possible. This may be places that you’ve visited, favourite food, languages spoken etc.
You have 5 minutes to do this.
The table with the most in common wins!
The Three H’s – shared by Claire Britton, CRUK
Resource was added by: Bec Hanley
Purpose of the activity:
A quick and interesting ice-breaker activity to enable a group of people to share top-line information about a recent highlight, challenge and something they’re looking forward to.
How to run this activity:
- Ask everyone to get into pairs.
- Each person to share a recent Highlight, Headache and what’s on the Horizon (hence the 3 H’s) with their partner
- After 5 minutes stop the conversation and bring everyone back together. Depending on how much time you have, ask people to volunteer to share their 3 H’s.
Training for people who get involved in research
Resource was added by: Bec Hanley
This paper describes how a number of member charities train people who get involved in research.
Our training for researchers – TEMPLATE AND SUPPORTING NOTES
Resource was added by: Bec Hanley
This template (and the accompanying slides and resources, which are also available to download from this page) aims to help you to run a half day training session for researchers about PPI. It has been updated several times, most recently in September 2019, following reviews by members who have used it.
The template and accompanying slides and resources have been developed by Charities Research Involvement Group members, in partnership with patients and carers. It is the property of the Charities Research Involvement Group and is free for CRIG members to use.
Please adapt it as you see fit, especially by using case studies that are relevant to your charity and by using your charity's branding on the slides and handouts. Note that there is an alternative version for session 4, which is used by Versus Arthritis - slides are available to download on this page.
PLEASE DO NOT SHARE THIS TEMPLATE OR THE ACCOMPANYING SLIDES AND RESOURCES WITH ANYONE OUTSIDE THE CRIG, UNLESS THEY ARE RUNNING THE TRAINING WITH YOU. Contact Bec if you have a query about this.
Please let us know how you are using this template and how useful you found it by completing the survey in the resources document (resource 6.2). This will allow us to improve the template and resources over time.