Resource was added by: Ben Morrison
As part of a project at Breast Cancer Now, we wanted to gather some insights into if and how other funders are incorporating involvement into their research funding activities.
We did this by creating a brief survey covering (among other things):
- If people with lived experience (PLE) are involved in research funding activities
- How PLE are involved
- How PLE are recruited and trained/guided/supported
- How grant applicants are trained/guided/supported
- Payment policies
- Impact evaluation
- Challenges
22 CRIG members, who fund research, were kind enough to complete the survey and agreed for their responses to be shared with the network. Attached is a spreadsheet containing the survey questions and responses received.
An Introduction and Practical Guide to Community Engagement and Involvement in Global Health Research
Resource was added by: Bec Hanley
A free online course on community engagement and involvement in global health research. Developed by NIHR in collaboration with MESH Community Engagement Network.
Versus Arthritis Research Partner Handbook
Resource was added by: Bec Hanley
What is this resource?
A handbook for people who get involved in research at Versus Arthritis
Who was it developed by?
The Research Involvement Team at Versus Arthritis.
When might it be useful?
If you're thinking about how to support people new to involvement in research
Versus Arthitis welcome training
Resource was added by: Bec Hanley
What is this resource?
Slides for a training session for people with lived experience who get involved in research at Versus Arthritis
Who was it developed by?
The research involvement team at Versus Arthritis.
When might it be useful?
If you're thinking about induction or training for people who get involved in research
My Voice Matters
Resource was added by: Bec Hanley
Guidance for people who want to share their lived experience, from Shaping Our Lives.
Online training for researchers – Imperial College
Resource was added by: Bec Hanley
What is this resource?
An online training course about involvement for researchers. Note that it is long and the emphasis is on co-production.To access the course for free, go to https://www.coursera.org/learn/public-involvement-in-research to create an account and then follow these Instructions: https://bit.ly/34vi3cg
Who was it developed by?
Imperial College London
When might it be useful?
Refer researchers to this PPI training or use it as inspiration when developing/delivering your own training for researchers.
Online PPI training for researchers – CRUK
Resource was added by: Bec Hanley
What is this resource?
Slides from a researcher training session on PPI, which was delivered online.
Who was it developed by?
Cancer Research UK, working in partnership with someone affected by cancer.
When might it be useful?
Refer to these slides if you are looking to deliver PPI training for researchers.
Training and learning for PPI members – what CRIG members are doing
Resource was added by: Bec Hanley
What is this resource?
This grid was developed in 2020 - it outlines what CRIG members had on offer in terms of training for Patient and Public Involvement (PPI) representatives/members. This is a historic document that has not been updated, but may be useful for reference if you're thinking about training for PPI.
Who was it developed by?
CRIG members.
When might it be useful?
Use it to see what other members are offering or to develop your own training.
Guide to reviewing grant applications for PPI members – MS Society
Resource was added by: Bec Hanley
What is this resource?
This distance learning pack details the MS Society’s approach to funding research and how lay members should review research grant applications. People affected by MS who want to lay review for the MS Society must complete this training pack.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for lay members who will be reviewing grant applications, or to learn more about the MS Society’s approach to involving people in grant funding decisions.
Distance learning pack for PPI members – MS Society
Resource was added by: Bec Hanley
What is this resource?
This distance learning pack offers an introduction to research and PPI, aimed at people affected by MS who are interested in getting involved.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for PPI members, or to learn more about the MS Society’s approach to involving people in research.