Resource was added by: Bec Hanley
Shared Learning Group members have created a fabulous PowerPoint template that you can adapt to train staff about involvement. You could use it on your organisation's online training platform or just send staff the PowerPoint slides. You can also use it as the basis for F2F training sessions or lunch and learn sessions.
The slide set is too big to add to the website, so there's a link to it below.
Thanks to Lydia Morgan for leading this project, and to working group members: Valerie Cadoret, Bridget Hopwood, Rachel Roberts, Holly Swinckels and Lorna Allen.
The Power of Patient Advocacy in Genomics Course
Resource was added by: Natasha Ratcliffe
Training resource developed by Wellcome Connecting Science.
‘The Power of Patient Advocacy in Genomics – Influencing Research, Clinical Practice and Decision-Making’, has been specifically designed to inform and inspire anyone who is interested in learning more about the role that patient advocates can play in improving genomics research or medicine. It also encourages learners to reflect on any advocacy role they may be developing, and includes a peer-reviewed exercise to help them develop a plan to take this further.
Speakers for training and awareness raising events
Resource was added by: Bec Hanley
Many of us run training events or awareness raising events for staff to tell them more about the value of involvement. This could be a general 'introduction to involvement' event, or it could have a specific focus and be aimed at a specific group of staff - e.g. involvement in campaigning.
It can be helpful to have someone from outside your organisation to give a talk at events like this. Here's a list of SLG members who are willing to give talks about specific topics, and/or to talk about the value of involvement in general.
It's correct as at June 2025.
If an SLG member gives a talk to staff at your organisation and you're not already on this list, please consider passing the favour on - contact Bec so that she can add you.
Involvement in research funding – a brief survey of CRIG members
Resource was added by: Ben Morrison
As part of a project at Breast Cancer Now, we wanted to gather some insights into if and how other funders are incorporating involvement into their research funding activities.
We did this by creating a brief survey covering (among other things):
- If people with lived experience (PLE) are involved in research funding activities
- How PLE are involved
- How PLE are recruited and trained/guided/supported
- How grant applicants are trained/guided/supported
- Payment policies
- Impact evaluation
- Challenges
22 CRIG members, who fund research, were kind enough to complete the survey and agreed for their responses to be shared with the network. Attached is a spreadsheet containing the survey questions and responses received.
An Introduction and Practical Guide to Community Engagement and Involvement in Global Health Research
Resource was added by: Bec Hanley
A free online course on community engagement and involvement in global health research. Developed by NIHR in collaboration with MESH Community Engagement Network.
Versus Arthritis Research Partner Handbook
Resource was added by: Bec Hanley
What is this resource?
A handbook for people who get involved in research at Versus Arthritis
Who was it developed by?
The Research Involvement Team at Versus Arthritis.
When might it be useful?
If you're thinking about how to support people new to involvement in research
Versus Arthitis welcome training
Resource was added by: Bec Hanley
What is this resource?
Slides for a training session for people with lived experience who get involved in research at Versus Arthritis
Who was it developed by?
The research involvement team at Versus Arthritis.
When might it be useful?
If you're thinking about induction or training for people who get involved in research
My Voice Matters
Resource was added by: Bec Hanley
Guidance for people who want to share their lived experience, from Shaping Our Lives.
Online training for researchers – Imperial College
Resource was added by: Bec Hanley
What is this resource?
An online training course about involvement for researchers. Note that it is long and the emphasis is on co-production.To access the course for free, go to https://www.coursera.org/learn/public-involvement-in-research to create an account and then follow these Instructions: https://bit.ly/34vi3cg
Who was it developed by?
Imperial College London
When might it be useful?
Refer researchers to this PPI training or use it as inspiration when developing/delivering your own training for researchers.
Online PPI training for researchers – CRUK
Resource was added by: Bec Hanley
What is this resource?
Slides from a researcher training session on PPI, which was delivered online.
Who was it developed by?
Cancer Research UK, working in partnership with someone affected by cancer.
When might it be useful?
Refer to these slides if you are looking to deliver PPI training for researchers.