Resource was added by: Bec Hanley
Hybrid involvement meetings (i.e. meetings that run virtually and in person at the same time) can be a good way to enable the inclusion and involvement of those who face barriers to attending a meeting in person, or who feel more comfortable joining remotely.
Here are soem top tips on running hybrid involvemnt meetings from five Shared Learning Group members who have run them.
Training and learning for PPI members – what CRIG members are doing
Resource was added by: Bec Hanley
What is this resource?
This grid was developed in 2020 - it outlines what CRIG members had on offer in terms of training for Patient and Public Involvement (PPI) representatives/members. This is a historic document that has not been updated, but may be useful for reference if you're thinking about training for PPI.
Who was it developed by?
CRIG members.
When might it be useful?
Use it to see what other members are offering or to develop your own training.
Guide to reviewing grant applications for PPI members – MS Society
Resource was added by: Bec Hanley
What is this resource?
This distance learning pack details the MS Society’s approach to funding research and how lay members should review research grant applications. People affected by MS who want to lay review for the MS Society must complete this training pack.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for lay members who will be reviewing grant applications, or to learn more about the MS Society’s approach to involving people in grant funding decisions.
Distance learning pack for PPI members – MS Society
Resource was added by: Bec Hanley
What is this resource?
This distance learning pack offers an introduction to research and PPI, aimed at people affected by MS who are interested in getting involved.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for PPI members, or to learn more about the MS Society’s approach to involving people in research.
Breast Cancer Now involvement impact report
Resource was added by: Bec Hanley
Report from Breast Cancer Now about the impact of their Insight and Experience Panel.
Impact report – Alzheimer’s Society Research Network
Resource was added by: Bec Hanley
What is this resource?
Alzheimer’s Society conducted an online survey and interviews with their Research Network volunteers and researchers they had collaborated with.This report details the output of the surveys and interviews, shares case studies and demonstrates the range of ways involvement can have an impact in research.
Who was it developed by?
Alzheimer’s Society.
When might it be useful?
Read this report to plan or improve the way you capture and share the impact of involvement.
Groups, networks, panels – what are the key ingredients for success?
Resource was added by: Bec Hanley
This paper looks at groups, networks and panels, and what helps people to stay involved in a group (of any size) that exists over a period of time. It summarises discussion and presentations at a Shared Learning Group on Involvement meeting in October 2017.
Guidance for lay panel members – Parkinson’s UK
Resource was added by: Laura Jacobs
What is this resource?
This guidance document is for lay panel members who may sometimes find it difficult contributing to discussions in board or panel meetings. This guide outlines some common challenges and how to address them.
Who was it developed by?
Parkinson’s UK
When might it be useful?
Share this guide with lay members who are joining board or panel meetings. Or, use it as inspiration to develop your own guidance.
Guidance for autism friendly meetings
Resource was added by: Bec Hanley