Resource was added by: Bec Hanley
What is this resource?
A definition of translational research, in plain English.
Who was it developed by?
A working goup of CRIG and TAR members, who sought a wide range of views.
When might it be useful?
Whenever you're working with people with lived experience around translational research
Versus Arthritis Research Partner Handbook
Resource was added by: Bec Hanley
What is this resource?
A handbook for people who get involved in research at Versus Arthritis
Who was it developed by?
The Research Involvement Team at Versus Arthritis.
When might it be useful?
If you're thinking about how to support people new to involvement in research
Versus Arthitis welcome training
Resource was added by: Bec Hanley
What is this resource?
Slides for a training session for people with lived experience who get involved in research at Versus Arthritis
Who was it developed by?
The research involvement team at Versus Arthritis.
When might it be useful?
If you're thinking about induction or training for people who get involved in research
Lay Reviewer Instructions – Tenovus Cancer Care
Resource was added by: Annee Amjad
What is this resource?
Instructions and Scoring Guidance for people affected by cancer who get involved in reviewing research applications and helping to decide if they should be funded.
Who was it developed by?
Tenovus Cancer Care
When might it be useful?
Use this resource for reference when developing your own guidance for lay reviewers.
Patient Ambassador Programme – European Lung Foundation
Resource was added by: Annee Amjad
What is this resource?
An online, self-learning programme that introduces patients and carers to some of the basic skills and knowledge needed to represent themselves and others successfully in involvement/ambassador roles.
Who was it developed by?
The European Lung Foundation
When might it be useful?
You may wish to refer people to the programme to help them develop the skills needed for PPI roles. Or use it for inspiration when developing your own training materials.
Research Champion’s pack – Crohn’s & Colitis UK
Resource was added by: Annee Amjad
What is this resource?
This pack helps Research Champions to understand how Crohn's & Colitis work, their strategy and mission and how they can get involved in research.
Who was it developed by?
Crohn's & Colitis UK
When might it be useful?
Refer to this pack if you're looking to develop materials to help PPI members understand your organisation and how they can get involved.
Rare Disease Research Network
Resource was added by: Annee Amjad
What is this resource?
A presentation outlining a project to build an online network of partnerships and resources to facilitate new patient-centred research opportunities for the rare disease community. The project will be co-produced by members of the rare community.
Who was it developed by?
Cambridge Rare Disease Network
When might it be useful?
Read about CamRARE's plans for building a new PPI network if you're planning to develop or grow PPI networks.
Research Network documents – Bowel Cancer UK
Resource was added by: Annee Amjad
What is this resource?
Bowel Cancer UK's Research Network helps to ensure the patient voice is heard throughout the research process. This document contains:
- Research Network member role description
- Research Network application form
- Research Network terms of membership
Who was it developed by?
Bowel Cancer UK
When might it be useful?
If you are developing documents to support the recruitment to your own PPI in research networks.
Insight Group Information Pack – Autistica
Resource was added by: Annee Amjad
What is this resource?
This information pack provides an overview of Autistica's Insight Group to help people decide if they would like to become a member. The Insight Group is a network of people with experience of Autism who are interested in influencing research, policy and strategy.
Who was it developed by?
Autistica
When might it be useful?
Refer to this document if you are developing materials to support networks of people who get involved in research to help them understand PPI and their role.
Health data research training for PPI members
Resource was added by: Bec Hanley
What is this resource?
An online training course to support people to get involved in health data research.
Who was it developed by?
Crohn’s & Colitis and Gut Reaction.
When might it be useful?
Direct people who get involved in research to this training or use it for inspiration when developing your own training.