Resource was added by: Bec Hanley
What is this resource?
This toolkit is a set of tools aiming to support researchers to plan and integrate public involvement in research, track public contributions and the difference they make and report impact against the National Standards for Public Involvement.
Who was it developed by?
This toolkit was developed by the Marie Curie Research Centre and Cardiff University.
When might it be useful?
This resource can be shared with researchers to support them to capture the impact of their involvement activities. It may also be used by charities to record internal involvement activities.
Methods for capturing impact of involvement in research – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in the journal Research Involvement and Engagement that explores the different methods used to capture the impact of involvement in research.
Who was it developed by?
The paper was written by Anmol Shahid, Inara N. Lalani, Brianna K. Rosgen, Bonnie G, Shelly Longmore, Jeanna Parsons Leigh, Henry T. Stelfox and Kirsten M. Fiest.
When might it be useful?
Refer to this resource when developing ways to capture the impact of involvement activities that you support.
Impact of PPI on the UK coronavirus immunology consortium
Resource was added by: Bec Hanley
What is this resource?
This report celebrates and showcases the positive impact of involving patients and the public in immunology research.
Who was it developed by?
The UK Coronavirus Immunology Consortium and the British Society for Immunology.
When might it be useful?
Useful reading if you’re working on PPI methods or capturing and sharing the impact of involvement.
The value of PPI in research for charities – CRIG paper
Resource was added by: Bec Hanley
What is this resource?
This CRIG paper looks at how involvement in research adds value for the charities that fund and support research (rather than to the research/researchers).
Note that this version of the report is for members only. There’s a public version of this report in the news section on our home page.
Who was it developed by?
CRIG paper - thanks to Cat Harvey and Laura Piercy.
When might it be useful?
Use this paper if advocating for the importance of involvement in research (and staff and resources to support it), for example with internal staff or senior leadership.
Capturing the impact of PPI – CRIG paper
Resource was added by: Bec Hanley
What is this resource?
A list of things CRIG members think it’s important to consider when capturing the impact of involvement in research.
Who was it developed by?
CRIG members
When might it be useful?
Read this paper to plan or improve the way you capture the impact of involvement. This document is public and can be shared widely.
Impact report – Alzheimer’s Society Research Network
Resource was added by: Bec Hanley
What is this resource?
Alzheimer’s Society conducted an online survey and interviews with their Research Network volunteers and researchers they had collaborated with.This report details the output of the surveys and interviews, shares case studies and demonstrates the range of ways involvement can have an impact in research.
Who was it developed by?
Alzheimer’s Society.
When might it be useful?
Read this report to plan or improve the way you capture and share the impact of involvement.
PPI feedback – guidance for researchers
Resource was added by: Bec Hanley
What is this resource?
This resource gives guidance to researchers on how to give feedback to people who get involved in research.
Who was it developed by?
Researchers at the University of Hertfordshire.
When might it be useful?
Share this resource with researchers to encourage them to provide feedback and updates to people who get involved in their work.
Arthritis Research UK involvement scoring system
Resource was added by: Bec Hanley
This slide deck explains a system that Chris Macdonald and his colleagues at Arthritis Research UK have developed to enable them to attribute scores to every funded research application to reflect the nature of interaction with patients and the quality of that interaction.
Chris says that although it's not perfect, it means that when you combine the score with other searchable and filter-able criteria, you can correlate scores with institution, individuals, type of grant, research call it was awarded in etc. ARUK can then analyse, assess and identify who needs support, who they can use for case studies or speakers at training sessions, or if a centre needs a slap on the wrist and an offer of training. They can also look at what are the most common types of involvement in certain types research or look across the whole portfolio over time to see how KPI’s (such as a simple ‘have they involved’) change as the community is better resourced and informed.
Cystic Fibrosis Trust feedback form
Resource was added by: Bec Hanley
Used to ask the views of people affected by CF about focus groups to discuss research. Thanks to Lorna Allen for sharing this.
Collecting research impact evidence
Resource was added by: Bec Hanley
What is this resource?
This guidance document is about the collection, management and use of sources of
impact evidence.
Who was it developed by?
Higher Education Funding Council for England.
When might it be useful?
Use this resource to learn about assessing and reporting on the impact of research studies, to inform grant monitoring and progress reports.