Resource was added by: Bec Hanley
Report from Breast Cancer Now about the impact of their Insight and Experience Panel.
Cystic Fibrosis Trust feedback form
Resource was added by: Bec Hanley
Used to ask the views of people affected by CF about focus groups to discuss research. Thanks to Lorna Allen for sharing this.
PPI support researcher feedback survey – Parkinson’s UK
Resource was added by: Laura Jacobs
This survey is sent to all researchers who receive Patient and Public Involvement support from Parkinson's UK to capture their experience of involvement and the impact it had on both the researcher and their research (impact questions are in section 4).
Young Women’s Trust journey questionnaire – part 1
Resource was added by: Bec Hanley
First of three journey questionnaires that Young Women's Trust advisory panel members fill in at the beginning, middle and end of their 2-years on the panel. It's a great tool to measure how effective their involvement has been for them in terms of skills, well-being, how far they feel they have been listened to by different audiences and their future aspirations.
Shelter’s guidelines for collecting user feedback
Resource was added by: Bec Hanley
Shelter has produced guidelines on collecting feedback from service users. This is a really helpful document if you're planning an evaluation or want to think about monitoring.