Resource was added by: Bec Hanley
What is this resource?
This distance learning pack details the MS Society’s approach to funding research and how lay members should review research grant applications. People affected by MS who want to lay review for the MS Society must complete this training pack.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for lay members who will be reviewing grant applications, or to learn more about the MS Society’s approach to involving people in grant funding decisions.
Distance learning pack for PPI members – MS Society
Resource was added by: Bec Hanley
What is this resource?
This distance learning pack offers an introduction to research and PPI, aimed at people affected by MS who are interested in getting involved.
Who was it developed by?
The MS Society.
When might it be useful?
Use this training pack for inspiration when developing your own training for PPI members, or to learn more about the MS Society’s approach to involving people in research.
Toolkit for charities beginning a PPI relationship
Resource was added by: Bec Hanley
What is this resource?
A toolkit to help research charities plan for a first involvement meeting with patients and carers.
Who was it developed by?
Health Research Charities Ireland and Trinity College Dublin.
When might it be useful?
Use this toolkit if preparting to set up and meet with a PPI group for the first time.
Training for people who get involved – what members are doing
Resource was added by: Bec Hanley
What is this resource?
This paper summarises presentations and subsequent discussions about what training people offer to those who get involved in research. Please note, these discussions took place at the CRIG meeting in March 2018 and this document has not since been updated.
Who was it developed by?
CRIG members.
When might this be useful?
To compare your approach to training for people who get involved with other CRIG members. Use for inspiration to develop your own training.
Guidance for lay panel members – Parkinson’s UK
Resource was added by: Laura Jacobs
What is this resource?
This guidance document is for lay panel members who may sometimes find it difficult contributing to discussions in board or panel meetings. This guide outlines some common challenges and how to address them.
Who was it developed by?
Parkinson’s UK
When might it be useful?
Share this guide with lay members who are joining board or panel meetings. Or, use it as inspiration to develop your own guidance.
Recruiting to PPI roles – member case studies
Resource was added by: Bec Hanley
What is this resource?
This CRIG paper shares our experience of recruiting people to get actively involved in research, and of how to support and enable them to cease their involvement when this is appropriate.
Who was it developed by?
Prostate Cancer UK and Parkinson’s UK
When might it be useful?
Read this to hear how members have recruited PPI members and supported them to stop being involved.