Resource was added by: Ben Morrison
As part of a project at Breast Cancer Now, we wanted to gather some insights into if and how other funders are incorporating involvement into their research funding activities.
We did this by creating a brief survey covering (among other things):
- If people with lived experience (PLE) are involved in research funding activities
- How PLE are involved
- How PLE are recruited and trained/guided/supported
- How grant applicants are trained/guided/supported
- Payment policies
- Impact evaluation
- Challenges
22 CRIG members, who fund research, were kind enough to complete the survey and agreed for their responses to be shared with the network. Attached is a spreadsheet containing the survey questions and responses received.
Stopping involvement
Resource was added by: Bec Hanley
In June 2022 the Shared Learning Group on Involvement talked about how to support people with lived experience to stop their involvement. Thanks to Abby Meadows from Turn2us, Nicola Lucey and Angela Slater from Mind and Derek Stewart, a patient advocate, for sharing their experience and prompting really useful discussions amongst members. This paper summarises our discussions.
We've made this paper available publicly, so you can share it widely if you wish.
Resource was added by: Leanda Ryan
Positive risk-taking: from rhetoric to reality
Resource was added by: Laura Pack-Hagan
A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
Positive risk taking – Steve Morgan and Nick Andrews
Resource was added by: Laura Pack-Hagan
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
Design/methodology/approach – The co-authors combine their knowledge and experience of supporting and developing staff working in dementia services. The concept of positive risk-taking is explored within the legislative framework of the Mental Capacity Act 2005, Safeguarding and the Care Act 2014.
Guidance for lay panel members – Parkinson’s UK
Resource was added by: Laura Jacobs
What is this resource?
This guidance document is for lay panel members who may sometimes find it difficult contributing to discussions in board or panel meetings. This guide outlines some common challenges and how to address them.
Who was it developed by?
Parkinson’s UK
When might it be useful?
Share this guide with lay members who are joining board or panel meetings. Or, use it as inspiration to develop your own guidance.
Dealing with behaviours that we find challenging
Resource was added by: Bec Hanley
We recognise that when you work with a range of people, some will behave in ways that you feel are inappropriate and/or challenging. This paper includes 'top tips' for dealing with these situations.
Evaluating user involvement
Resource was added by: Bec Hanley
This is a 'think piece', produced by the Shared Learning Group, about evaluating service user and carer involvement. It was written some time ago and some of the references are out-of-date, but the content is still useful.