Resource was added by: Bec Hanley
What is this resource?
This report summarises the findings of a project to gain insights into why people from black communities do not engage in Crohn’s & Colitis research. The report includes recommendations to increase engagement with Black communities.
Who was it developed by?
This report shares the findings from a project commissioned by Crohn’s & Colitis UK and carried out by ClearView Research.
When might it be useful?
Refer to this resource for ideas and suggestions if you are trying to engage Black communities in research.
EDI toolkit for researchers
Resource was added by: Bec Hanley
What is this resource?
This toolkit aims to help researchers to understand EDI issues relevant to research. It contains a set of practical resources to help researchers engage with EDI issues in their projects and to create inclusive teams to deliver research.
Who was it developed by?
Newcastle University.
When might it be useful?
Use the resources in the toolkit when making EDI plans in research and refer researchers to it to support their work.
From Transactional to Truly Collaborative: Improving Relationships Between Industry and Patient Organisations
Resource was added by: Bec Hanley
What is this resource?
This report shares the findings of a project aiming to understand and improve how patient organisations and pharmaceutical companies work together. Specifically, the project aimed to:
- Provide clarity about how pharma are working with UK-based patients and patient organisations and how they would like to work with them in future.
- Help patient organisations plan how they would work with pharma.
- Encourage pharma to consider improving their relationship with patient organisations.
Who was it developed by?
The project was led by Versus Arthritis, Parkinson’s UK, Cystic Fibrosis Trust, Alzheimer’s Society, Gene People, Alopecia UK, MS Society and Asthma and Lung UK.
When might it be useful?
Refer to this report if you’ve been approached by a pharmaceutical company or are considering working in collaboration with them.
Public Involvement in Research Impact Toolkit
Resource was added by: Bec Hanley
What is this resource?
This toolkit is a set of tools aiming to support researchers to plan and integrate public involvement in research, track public contributions and the difference they make and report impact against the National Standards for Public Involvement.
Who was it developed by?
This toolkit was developed by the Marie Curie Research Centre and Cardiff University.
When might it be useful?
This resource can be shared with researchers to support them to capture the impact of their involvement activities. It may also be used by charities to record internal involvement activities.
Socioeconomic barriers to participation in research – Trial Forge framework
Resource was added by: Bec Hanley
What is this resource?
This framework has been designed to aid researchers, who are designing clinical trials, to consider barriers to including patients from socioeconomically disadvantaged backgrounds in their trials. The framework can also help researchers to develop strategies to attempt to address such barriers in order to improve the design and conduct of clinical research.
Who was it developed by?
Trial Forge, with funding from the University of Liverpool and the NIHR.
When might it be useful?
This resource is useful in the planning and design of clinical trials and to direct researchers to.
Methods for capturing impact of involvement in research – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in the journal Research Involvement and Engagement that explores the different methods used to capture the impact of involvement in research.
Who was it developed by?
The paper was written by Anmol Shahid, Inara N. Lalani, Brianna K. Rosgen, Bonnie G, Shelly Longmore, Jeanna Parsons Leigh, Henry T. Stelfox and Kirsten M. Fiest.
When might it be useful?
Refer to this resource when developing ways to capture the impact of involvement activities that you support.
Impact of PPI on the UK coronavirus immunology consortium
Resource was added by: Bec Hanley
What is this resource?
This report celebrates and showcases the positive impact of involving patients and the public in immunology research.
Who was it developed by?
The UK Coronavirus Immunology Consortium and the British Society for Immunology.
When might it be useful?
Useful reading if you’re working on PPI methods or capturing and sharing the impact of involvement.
How to talk about PPI in an accessible way – CRIG and Egality paper
Resource was added by: Bec Hanley
What is this resource?
This guide summarises the discussions and learnings from a CRIG meeting with Egality and ‘community connectors’ about the challenges of explaining what involvement is to people who are new to research and PPI.
Who was it developed by?
CRIG members, Egality and community connectors.
When might it be useful?
Use these learnings when you are communicating about involvement in research, setting up a PPI network or refreshing comms about PPI.
CRIG benchmarking 2021/22 – presentation of results
Resource was added by: Bec Hanley
What is this resource?
These slides highlight the key results from the 2021/22 benchmarking exercise. You can also find the full results in the resource centre.
Who was it developed by?
CRIG members, with special thanks to Caroline Schmutz for the analysis and slides.
When might it be useful?
The benchmarking results are useful for comparing the scope and resources that CRIG member organisations put into involvement in research.
CRIG benchmarking comparisons
Resource was added by: Bec Hanley
What is this resource?
Data showing a comparison of recent benchmarking exercises.
Who was it developed by?
CRIG members, with special thanks to Caroline Schmutz for the analysis.
When might it be useful?
The benchmarking results are useful for comparing the scope and resources that CRIG member organisations put into involvement in research.