Resource was added by: Bec Hanley
What is this resource?
The full benchmarking results from 2021/22.
Who was it developed by?
CRIG members, with special thanks to Caroline Schmutz for the analysis.
When might it be useful?
The benchmarking results are useful for comparing the scope and resources that CRIG member organisations put into involvement in research.
Health data research training for PPI members
Resource was added by: Bec Hanley
What is this resource?
An online training course to support people to get involved in health data research.
Who was it developed by?
Crohn’s & Colitis and Gut Reaction.
When might it be useful?
Direct people who get involved in research to this training or use it for inspiration when developing your own training.
Online training for researchers – Imperial College
Resource was added by: Bec Hanley
What is this resource?
An online training course about involvement for researchers. Note that it is long and the emphasis is on co-production.To access the course for free, go to https://www.coursera.org/learn/public-involvement-in-research to create an account and then follow these Instructions: https://bit.ly/34vi3cg
Who was it developed by?
Imperial College London
When might it be useful?
Refer researchers to this PPI training or use it as inspiration when developing/delivering your own training for researchers.
Online PPI training for researchers – CRUK
Resource was added by: Bec Hanley
What is this resource?
Slides from a researcher training session on PPI, which was delivered online.
Who was it developed by?
Cancer Research UK, working in partnership with someone affected by cancer.
When might it be useful?
Refer to these slides if you are looking to deliver PPI training for researchers.
ABPI patient engagement strategy
Resource was added by: Bec Hanley
What is this resource?
The Association of the British Pharmaceutical Industry (ABPI) published this patient engagement strategy where they outline their commitments to:
- Involving patient organisations in all ABPI policies and campaigns
- Develop practical resources to make collaboration between industry and patient organisations easier
- Foster a patient centred organisational culture at the ABPI and support industry members to do the same
Who was it developed by?
The Association of the British Pharmaceutical Industry (ABPI).
When might it be useful?
Useful to reference if you are working with pharma.
Improving diversity in research – Egality workshop recording
Resource was added by: Bec Hanley
What is this resource?
Recording of a workshop for CRIG members to explore how we might improve the diversity of people are involved in research. This was held on 20th August 2021.
Passcode: !f4@QFZ=
Who was it developed by?
Egality and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks.
Improving the way we communicate about PPI – English Unlocked workshop
Resource was added by: Bec Hanley
What is this resource?
A recording of a workshop to look at writing in plain English to encourage involvement of people whose first language is not English. This workshop was part of a broader session looking at improving diversity of involvement in health research, held on 20th August 2021.
Password: !f9l5S33
Who was it developed by?
English Unlocked and CRIG members.
When might it be useful?
Listen back to the workshop if you are trying to improve the diversity of your PPI networks or communicating about involvement in research.
Reflections from the pandemic on inequalilties and PPI – journal paper
Resource was added by: Bec Hanley
What is this resource?
A paper published in Health Expectations journal reflecting on the changes in PPI practice resulting from the pandemic. They explore PPI through an inequalities lens and suggest a more rigorous review of PPIE practice is necessary to widen involvement in research.
Who was it developed by?
The paper was written by Michael Clark, Esther van Vliet and Michelle Collins
When might it be useful?
Read the paper when reviewing PPI methods and practices within your organisation.
Toolkit – Involving YP in research
Resource was added by: Maddie Still
Created by Generation R Alliance/eYPAGnet, this Toolkit will help you set up and run a Young Persons Advisory Group, allowing the voices of children and young people to be heard in research.
Includes useful documents and resources to support YP engagement in research involvement
PPI in lab-based research – what are CRIG members doing?
Resource was added by: Bec Hanley
What is this resource?
This paper is a summary from the discussions at the CRIG meeting in December 2020 about how members approach supporting PPI in lab-based research. It covers how members involve people in lab-based research, challenges and improvements.
Who was it developed by?
CRIG members.
When might it be useful?
Refer to this to get an overview of what other members approach to supporting PPI in lab-based research is and to develop your own position.