Resource was added by: Bec Hanley
What is this resource?
Blog about the development of work with industry to promote PPI in Parkinson's research
Who developed it?
Nikul Bakshi at Parkinsin's UK
When might it be useful?
If you're thinking about working with industry to develop/support involvement
Explaining what translational research is
Resource was added by: Bec Hanley
What is this resource?
A definition of translational research, in plain English.
Who was it developed by?
A working goup of CRIG and TAR members, who sought a wide range of views.
When might it be useful?
Whenever you're working with people with lived experience around translational research
Part of the glue: How research funders can support more equitable partnerships between community organisations and academic researchers
Resource was added by: Bec Hanley
What is this resource?
This reportexplores how funders can improve partnerships between community organisations and academics in the research they support. It combines existing guidance with interviews and focus groups with community representatives, academic researchers and funders.
Who was it developed by?
Pete Fleischmann for the Vivensa Foundation
When might it be useful?
If you'e thinking about building links with community organisations.
A Friendly Guide to Equality, Diversity & Inclusion (EDI) in Public and Patient Involvement (PPI)
Resource was added by: Bec Hanley
This guide is about turning the ideas of equality, diversity, and inclusion (EDI) into practical action. Published by health Research Charities Ireland (a CRIG member organisation), the aim is to move beyond theory and show what you can actually do to make involvement in research more welcoming and enjoyable for everyone.
Inclusion by design: How to address structural and cultural barriers to PPIE in academic research
Resource was added by: Bec Hanley
This report was produced by Genetic Alliance UK, in collaboration with Rare Disease Research UK and the LifeArc Translational Centres for Rare Disease. The report explores why patient and public involvement and engagement (PPIE) remains difficult to deliver meaningfully in academic research and draws on insights from researchers at different career stages to set out eight practical recommendations for systems-level change. While grounded in rare disease research, the findings are relevant across biomedical and healthcare research, combining longer-term priorities with practical ‘quick wins’ to help embed more inclusive research practices.
Building safe and trustworthy processes to address fraudulent involvement
Resource was added by: Bec Hanley
Almost everyone who gets involved in research will have the lived experience that Shared Learning Group and Charities Research Involvement Group members are seeking. But in a very
small number of cases, this is not the case. The aim of this guidance is to help CRIG
SLG members to build and manage a robust involvement process by preventing and
addressing involvement which may be deemed to be ineligible or fraudulent.
Thanks to the CRIG members and their colleagues who put this guide together - Anna Goodman, Julia Clark, Ben Willis, Lesley Booth, Gillian McCarthy and Priyanka Punja
Amplifying patient involvement in translational research
Resource was added by: Bec Hanley
This is a report of an event organised by the Charities Research Involvement Group, LifeArc and the Translating and Accelerating Research Network (TAR) on 22nd May 2025. The event, entitled Amplifying patient involvement in translational research, was attended by people with lived experience, members of CRIG and TAR and their colleagues.
This report includes examples of invovlent in translational research.
Exploring Imposter or Fraudulent Participants in Qualitative Research and PPI
Resource was added by: Bec Hanley
Slides from a webinar organised by the NIHR Research Support Service
Co-production in research in UK higher education – report
Resource was added by: Bec Hanley
Interesting report by the Co-production Futures Inquiry which is exploring the barriers to co-produced and participatory research within UK higher education, and how these might be addressed.
Involving minoritised communities in research
Resource was added by: Bec Hanley
Here's a recording of a webinar led by Diabetes UK, where they talk about thir experience of involving different minoritised communities in research supported by the charity.