Resource was added by: Bec Hanley
What is this resource?
Produced to celebrate McPin’s 10th anniversary, these '10 for 10' resources showcase the charity's learning and reflections from working across a wide range of projects.
They are not ‘how to’ guides - they present thinking and learning to date. The resources have been produced to spark conversations amongst the wider mental health research community, and beyond.
These resources explore how to use lived experience in the workplace; reflect on McPin's public involvement and peer research; look at their ongoing journey towards antiracism; offer guidance on neurodivergent-inclusive meetings and more.
Who was it developed by?
McPin Foundation
When might it be useful?
When you're looking for information, advice or inspiration!
CRIG benchmarking presentation
Resource was added by: Bec Hanley
What is this resource?
The presentation to summarise the results of the benchmarking survey, and to compare this with results in previous years and results of a similar survey in Ireland
Who was it developed by?
This was put together by Caroline Schmutz.
When might it be useful?
If you're looking for info about what other CRIG members are doing, and how this has developed.
CRIG benchmarking 2023 – full results
Resource was added by: Bec Hanley
What is this resource?
Full results of the CRIG benchmarking survey
Who was it developed by?
The CRIG Benchmarking Group - thanks to Caroline Schmutz, Sarah Delaney and Ella Mercer. Thanks also to Laura Jacobs at Parkinsion's Uk for hosting the survey
When might it be useful?
For reviewing who is doing what, and to check your activity against that of your peers.
Versus Arthritis Research Partner Handbook
Resource was added by: Bec Hanley
What is this resource?
A handbook for people who get involved in research at Versus Arthritis
Who was it developed by?
The Research Involvement Team at Versus Arthritis.
When might it be useful?
If you're thinking about how to support people new to involvement in research
Versus Arthitis welcome training
Resource was added by: Bec Hanley
What is this resource?
Slides for a training session for people with lived experience who get involved in research at Versus Arthritis
Who was it developed by?
The research involvement team at Versus Arthritis.
When might it be useful?
If you're thinking about induction or training for people who get involved in research
PPI role description template for use by researchers
Resource was added by: Bec Hanley
What is this resource?
A template for use by researchers who want to involve people with lived experience in Parkinson's research.
Who was it developed by?
The research involvement team at Parkinsons's UK.
When might is be useful?
To share with researchers who want to involve people. As a base if you are planning to involve people and need to develop a role description.
Lay Reviewer Instructions – Tenovus Cancer Care
Resource was added by: Annee Amjad
What is this resource?
Instructions and Scoring Guidance for people affected by cancer who get involved in reviewing research applications and helping to decide if they should be funded.
Who was it developed by?
Tenovus Cancer Care
When might it be useful?
Use this resource for reference when developing your own guidance for lay reviewers.
Research support policy – Parkinson’s UK
Resource was added by: Annee Amjad
What is this resource?
This policy sets out what research Parkinson's UK support via community involvement and participation. The policy has been developed in partnership with people living with Parkinson’s.
Who was it developed by?
Parkinson's UK
When might it be useful?
Refer to this when deciding what kinds of projects you will/won't support and to develop your own policy documents.
Supporting pharma with PPI – Parkinson’s UK guidelines
Resource was added by: Annee Amjad
What is this resource?
These guidelines outline how Parkinson's UK will support industry with involvement. They will support projects where the primary purpose is to benefit the Parkinson’s community.
Who was it developed by?
Parkinson's UK
When might it be useful?
Refer to this document if you are thinking about how your organisation might work with industry and what you'd need to put in place.
Staying connected with participants – Parkinson’s UK toolkit
Resource was added by: Annee Amjad
What is this resource?
This toolkit is a simple communication framework to help researchers share updates with research participants. Many participants have shared that they would be more likely to keep taking part in research if they received more updates.
Who was it developed by?
Parkinson's UK
When might it be useful?
Whilst this toolkit is focused on participation in research, elements of the toolkit can also be used to keep PPI members updated. Parkinson's UK also encourage researchers to work with PPI members when designing the communications within the toolkit.