Resource was added by: Bec Hanley
This covers 2024-2027, and is deliberately not a 'strategy'. The focus is on how the work will be done. Thanks to Josh Harsant for sharing this.
Alzheimer’s Research UK involvement strategy
Resource was added by: Bec Hanley
Here's an executive summary of the strategy. Thanks to Joann Leeding for sharing this. There's a presentation about the development of this in the notes of the Charities Research Involvement Group meeting on 11th June 2024.
Diabetes UK toolkit for ensuring inclusive and accessible involvement
Resource was added by: Bec Hanley
Developed by the Diabetes UK involvement team to support healthcare professionals with inclusive and accessible involvement.
Safeguarding in the context of involvement
Resource was added by: Bec Hanley
This paper summarises discussions that took place at a workshop to explore the issue of safeguarding in the context of involvement. It was set up by Natasha Ratcliffe from LifeArc and Jessica Bush from Marie Curie, following a question raised by Natasha at a meeting of the Charities Research Involvement Group (CRIG). The workshop was attended by members of the CRIG and the Shared Learning Group on Involvement.
This paper is NOT a guide to safeguarding – there are many resources available if you’re looking for this. Instead, it aims to capture our discussions about safeguarding in an involvement context.
Lived experience theory of change
Resource was added by: Bec Hanley
Developed by Breast Cancer Now - thanks to Susanna Glover for sharing this. Useful if you are develping an involvement strategy or thinking about impact.
Breast Cancer Now’s Patient Involvemnt Strategy
Resource was added by: Bec Hanley
Useful document to look at for inspiration if you are developing an involvement startegy.
WHO resolution on participation
Resource was added by: Bec Hanley
Useful if you're looking for policy to back up the reuirement for involvent in health, this resultion was made in June 2024.
Peer Power’s guidance on ethical story telling
Resource was added by: Bec Hanley
Useful and short guidance on how to do this ethically.
Inclusive involvement pledge
Resource was added by: Bec Hanley
The pledge is made up of 12 simple steps. The steps outline how people who are organising involvement activities can help and support people with lived experience in a positive, inclusive, and effective way.
Nine basic requirements for meaningful and ethical children’s participation
Resource was added by: Bec Hanley
Guidance to ensure quality involvement in all processes in which children are listened to.