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Getting started

In this section you’ll find information that could be useful to you if you and/or your organisation are new to involvement – for example, information about the principles of involvement, as well as some involvement strategies.

Guidance – Safeguarding considerations for patient engagement

Uploaded: 18th March 2025 | Topic: Guidelines and good practice

Resource was added by: Natasha Ratcliffe

This internal guidance was developed by LifeArc to sit alongside their Safeguarding Policy to help colleagues consider what they may need to think about when planning and carrying out patient engagement activities. The guidance does not replace LifeArc's Safeguarding Policy, and does not provide an exhaustive list of considerations.

Resource keywords: organisational planning policy

Involvement in research funding – a brief survey of CRIG members

Uploaded: 18th February 2025 | Topic: Involvement strategies

Resource was added by: Ben Morrison

As part of a project at Breast Cancer Now, we wanted to gather some insights into if and how other funders are incorporating involvement into their research funding activities.

We did this by creating a brief survey covering (among other things):
- If people with lived experience (PLE) are involved in research funding activities
- How PLE are involved
- How PLE are recruited and trained/guided/supported
- How grant applicants are trained/guided/supported
- Payment policies
- Impact evaluation
- Challenges

22 CRIG members, who fund research, were kind enough to complete the survey and agreed for their responses to be shared with the network. Attached is a spreadsheet containing the survey questions and responses received.

Resource keywords: payment challenges questionnaires and surveys panels and networks lay review training impact

Safeguarding in the context of involvement

Uploaded: 20th August 2024 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

This paper summarises discussions that took place at a workshop to explore the issue of safeguarding in the context of involvement. It was set up by Natasha Ratcliffe from LifeArc and Jessica Bush from Marie Curie, following a question raised by Natasha at a meeting of the Charities Research Involvement Group (CRIG). The workshop was attended by members of the CRIG and the Shared Learning Group on Involvement.
This paper is NOT a guide to safeguarding – there are many resources available if you’re looking for this. Instead, it aims to capture our discussions about safeguarding in an involvement context.

Resource keywords: N/A