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Getting started

In this section you’ll find information that could be useful to you if you and/or your organisation are new to involvement – for example, information about the principles of involvement, as well as some involvement strategies.

Safeguarding in the context of involvement

Uploaded: 20th August 2024 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

This paper summarises discussions that took place at a workshop to explore the issue of safeguarding in the context of involvement. It was set up by Natasha Ratcliffe from LifeArc and Jessica Bush from Marie Curie, following a question raised by Natasha at a meeting of the Charities Research Involvement Group (CRIG). The workshop was attended by members of the CRIG and the Shared Learning Group on Involvement.
This paper is NOT a guide to safeguarding – there are many resources available if you’re looking for this. Instead, it aims to capture our discussions about safeguarding in an involvement context.

Resource keywords: N/A

WHO framework for meaningful engagement

Uploaded: 5th July 2023 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

This WHO framework for meaningful engagement of people living with noncommunicable diseases,
and mental health and neurological conditions might be useful if you need to reference influential bodies when you're trying to push for meaningful involvement, especially at an international level.

Resource keywords: good practice examples policy

Stopping involvement

Uploaded: 25th August 2022 | Topic: Guidelines and good practice

Resource was added by: Bec Hanley

In June 2022 the Shared Learning Group on Involvement talked about how to support people with lived experience to stop their involvement. Thanks to Abby Meadows from Turn2us, Nicola Lucey and Angela Slater from Mind and Derek Stewart, a patient advocate, for sharing their experience and prompting really useful discussions amongst members. This paper summarises our discussions.
We've made this paper available publicly, so you can share it widely if you wish.

Resource keywords: challenges feedback