Resource was added by: Bec Hanley
What is this resource?
A template form for researchers requesting PPI support. CRIG members are approached by researchers who need help finding PPI members. Many CRIG members ask researchers to complete an application form to help them decide whether they will share the PPI opportunity with their network, and if so what information they will share. This document includes example forms from members.
Who was it developed by?
CRIG members.
When might it be useful?
Use this template to develop a PPI support request form to share with researchers in your field.
Supporting PPI in industry-led research
Resource was added by: Bec Hanley
What is this resource?
This guidance aims to help charities in the UK and the Republic of Ireland to promote and support patient and public involvement (PPI) in industry-led research.
Who was it developed by?
CRIG Pharma Working Group and Health Research Charities Ireland.
When might it be useful?
Read and refer to this resource if working with pharma on PPI activities or to gain an understanding of the challenges of working in this area.
PPI in the development of core outcome sets
Resource was added by: Bec Hanley
What is this resource?
This film explains what core outcome sets (COS) are, why they are important, and how patients and the public are involved in developing COS.
Who was it developed by?
The COMET initiative.
When might it be useful?
Read and refer to this when working on developing COS. You can also refer PPI members to this resource if they are involved in COS projects.
CRIG benchmarking 2018 – full results
Resource was added by: Bec Hanley
What is this resource?
The full benchmarking results from 2018.
Who was it developed by?
CRIG members.
When might it be useful?
The benchmarking results are useful for comparing the scope and resources that CRIG member organisations put into involvement in research.
Guidance about public co-applicants
Resource was added by: Bec Hanley
What is this resource?
Guidance to help patients and carers who are asked to be co-applicants on a research funding application, and researchers who want to do this.
Who was it developed by?
NHS R&D Forum, Health Research Authority and INVOLVE.
When might it be useful?
Read to gain an understanding of public co-applicants and how you might support them. Signpost this resource to researchers and members of the public who are working together in this way.
Capturing the impact of PPI – CRIG paper
Resource was added by: Bec Hanley
What is this resource?
A list of things CRIG members think it’s important to consider when capturing the impact of involvement in research.
Who was it developed by?
CRIG members
When might it be useful?
Read this paper to plan or improve the way you capture the impact of involvement. This document is public and can be shared widely.
Impact report – Alzheimer’s Society Research Network
Resource was added by: Bec Hanley
What is this resource?
Alzheimer’s Society conducted an online survey and interviews with their Research Network volunteers and researchers they had collaborated with.This report details the output of the surveys and interviews, shares case studies and demonstrates the range of ways involvement can have an impact in research.
Who was it developed by?
Alzheimer’s Society.
When might it be useful?
Read this report to plan or improve the way you capture and share the impact of involvement.
Training for people who get involved – what members are doing
Resource was added by: Bec Hanley
What is this resource?
This paper summarises presentations and subsequent discussions about what training people offer to those who get involved in research. Please note, these discussions took place at the CRIG meeting in March 2018 and this document has not since been updated.
Who was it developed by?
CRIG members.
When might this be useful?
To compare your approach to training for people who get involved with other CRIG members. Use for inspiration to develop your own training.
CRIG training for researchers – template and supporting notes
Resource was added by: Bec Hanley
What is this resource?
This template (and the accompanying slides and resources, which are also available to download from the resource centre) aims to help you to run a half-day PPI training session for researchers.
It has been updated several times, most recently in September 2019, following reviews by members who have used it. There is also an alternative version for session 4, which is available to download from the resource centre.
Who was it developed by?
The template and accompanying slides and resources have been developed by Charities Research Involvement Group members, in partnership with patients and carers. It is the property of the Charities Research Involvement Group and is free for CRIG members to use.
When might it be useful?
Use this resource to plan and deliver a PPI training session for the researchers you support. You can adapt the training session as you see fit, especially by using case studies that are relevant to your charity and by using your charity's branding on the slides and handouts.
DO NOT SHARE THIS TEMPLATE OR THE ACCOMPANYING SLIDES AND RESOURCES WITH ANYONE OUTSIDE THE CRIG, UNLESS THEY ARE RUNNING THE TRAINING WITH YOU. Contact Bec if you have a query about this.
CRIG training for researchers – resources
Resource was added by: Bec Hanley
What is this resource?
These resources (and the accompanying slides and templates, which are also available to download from the resource centre) aim to help you to run a half-day PPI training session for researchers.
It has been updated several times, most recently in September 2019, following reviews by members who have used it.
Who was it developed by?
The template and accompanying slides and resources have been developed by Charities Research Involvement Group members, in partnership with patients and carers. It is the property of the Charities Research Involvement Group and is free for CRIG members to use.
When might it be useful?
Use this resource to plan and deliver a PPI training session for the researchers you support. You can adapt the training session as you see fit, especially by using case studies that are relevant to your charity and by using your charity's branding on the slides and handouts.
DO NOT SHARE THIS TEMPLATE OR THE ACCOMPANYING SLIDES AND RESOURCES WITH ANYONE OUTSIDE THE CRIG, UNLESS THEY ARE RUNNING THE TRAINING WITH YOU. Contact Bec if you have a query about this.