Resource was added by: Bec Hanley
What is this resource?
These slides (and the accompanying resources and templates, which are also available to download from the resource centre) aim to help you to run a half-day PPI training session for researchers.
It has been updated several times, most recently in September 2019, following reviews by members who have used it.
Who was it developed by?
The slides, template, accompanying slides and resources have been developed by Charities Research Involvement Group members, in partnership with patients and carers. It is the property of the Charities Research Involvement Group and is free for CRIG members to use.
When might it be useful?
Use this resource to plan and deliver a PPI training session for the researchers you support. You can adapt the training session as you see fit, especially by using case studies that are relevant to your charity and by using your charity's branding on the slides and handouts.
DO NOT SHARE THIS TEMPLATE OR THE ACCOMPANYING SLIDES AND RESOURCES WITH ANYONE OUTSIDE THE CRIG, UNLESS THEY ARE RUNNING THE TRAINING WITH YOU. Contact Bec if you have a query about this.
CRIG training for researchers – alternative session 4 on communication
Resource was added by: Bec Hanley
What is this resource?
These resources (and the accompanying slides and templates, which are also available to download from the resource centre) aim to help you to run a half-day PPI training session for researchers.
This is another option to look at when you're planning the training - a longer session on communicating, focusing on writing in plain English.
Because of the size of this file this is a PDF. If you'd like the PowerPoint version please contact Bec.
Who was it developed by?
Arthritis Research UK.
When might it be useful?
Use this resource to plan and deliver a PPI training session for the researchers you support. You can adapt the training session as you see fit, especially by using case studies that are relevant to your charity and by using your charity's branding on the slides and handouts.
PPI feedback – guidance for researchers
Resource was added by: Bec Hanley
What is this resource?
This resource gives guidance to researchers on how to give feedback to people who get involved in research.
Who was it developed by?
Researchers at the University of Hertfordshire.
When might it be useful?
Share this resource with researchers to encourage them to provide feedback and updates to people who get involved in their work.
Arthritis Research UK involvement scoring system
Resource was added by: Bec Hanley
This slide deck explains a system that Chris Macdonald and his colleagues at Arthritis Research UK have developed to enable them to attribute scores to every funded research application to reflect the nature of interaction with patients and the quality of that interaction.
Chris says that although it's not perfect, it means that when you combine the score with other searchable and filter-able criteria, you can correlate scores with institution, individuals, type of grant, research call it was awarded in etc. ARUK can then analyse, assess and identify who needs support, who they can use for case studies or speakers at training sessions, or if a centre needs a slap on the wrist and an offer of training. They can also look at what are the most common types of involvement in certain types research or look across the whole portfolio over time to see how KPI’s (such as a simple ‘have they involved’) change as the community is better resourced and informed.
Patient involvement toolkit for researchers – CRUK
Resource was added by: Bec Hanley
What is this resource?
A toolkit containing guidance, tips and templates to help researchers plan, deliver and evaluate patient involvement.
Who was it developed by?
Cancer Research UK.
When might it be useful?
Share the resource with researchers or use it for inspiration for developing your own guidance for researchers.
Cystic Fibrosis Trust feedback form
Resource was added by: Bec Hanley
Used to ask the views of people affected by CF about focus groups to discuss research. Thanks to Lorna Allen for sharing this.
Collecting research impact evidence
Resource was added by: Bec Hanley
What is this resource?
This guidance document is about the collection, management and use of sources of
impact evidence.
Who was it developed by?
Higher Education Funding Council for England.
When might it be useful?
Use this resource to learn about assessing and reporting on the impact of research studies, to inform grant monitoring and progress reports.
Guidance for lay panel members – Parkinson’s UK
Resource was added by: Laura Jacobs
What is this resource?
This guidance document is for lay panel members who may sometimes find it difficult contributing to discussions in board or panel meetings. This guide outlines some common challenges and how to address them.
Who was it developed by?
Parkinson’s UK
When might it be useful?
Share this guide with lay members who are joining board or panel meetings. Or, use it as inspiration to develop your own guidance.
GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research
Resource was added by: Lynne Hughes
What is this resource?
A research paper outlining the GRIPP2 reporting checklists and how they were developed. GRIPP2 details the key items to report about PPI to enhance the quality, transparency, and consistency of the evidence base. They were developed by systematically reviewing the previous checklist, conducting a Delphi survey and hosting a meeting to reach a consensus on the key items to report on.
Who was it developed by?
Researcher Sophie Staniszewska and colleagues
When might it be useful?
Refer to this paper and the GRIPP2 guidelines when capturing and sharing the outcome or impact of PPI activities, especially if writing up papers for journals. Refer researchers to the checklist and encourage them to report on PPI in their publications.
CRIG benchmarking 2017 – full results
Resource was added by: Bec Hanley
What is this resource?
The full benchmarking results from 2017 (in spreadsheet format).
Who was it developed by?
CRIG members.
When might it be useful?
The benchmarking results are useful for comparing the scope and resources that CRIG member organisations put into involvement in research.