Resource was added by: Bec Hanley
Report from Breast Cancer Now about the impact of their Insight and Experience Panel.
PPI support request forms – CRIG guidance and examples
Resource was added by: Bec Hanley
What is this resource?
A template form for researchers requesting PPI support. CRIG members are approached by researchers who need help finding PPI members. Many CRIG members ask researchers to complete an application form to help them decide whether they will share the PPI opportunity with their network, and if so what information they will share. This document includes example forms from members.
Who was it developed by?
CRIG members.
When might it be useful?
Use this template to develop a PPI support request form to share with researchers in your field.
Current affairs – shared by Laura Elliot, Pancreatic Cancer UK
Resource was added by: Bec Hanley
Local elections are coming up next week! Imagine you are standing for election – for our introduction exercise today, I’d like you to think of two pledges you would include in your manifesto to win over the voters. One of your ideas should be practical and deliverable, but the other can be completely blue-sky, dream-world, no-constraints fabulous. Discuss on your tables, and then we’ll share some of your manifesto ideas with the group.
Collage exercise – shared by Bethany Bateman, British Lung Foundation
Resource was added by: Bec Hanley
This can be a great ice-breaker but doubles up as a way of getting people to think differently about a topic.
You will need:
• Flip chart paper
• Magazines, newspapers and health information/literature about your charity (the latter two are useful as they will have topical words and images that may be relevant)
• Glue sticks
Before people arrive, pick one or two topics and write them on flip chart paper
• This could just be “me”, “my condition” or “health” if all you want is an ice-breaker
• You could also pick a topic that you’ll cover later in the day, eg. “prevention”, “diagnosis”, “hospital care”, etc
As people arrive, ask them to start ripping images, sentences, headlines, etc out of the newspapers and magazines, that they think are relevant to the topics on the flipchart paper.
Ask them to glue the things they’ve cut out to the relevant topic.
About 10 minutes before the end of your allotted time, ask the delegates to look at the collages with you and start to share why they made those choices
If I have chosen a topic that we’ll cover later in the day, save discussion of that collage until you’re ready to start on that topic. I ask people to volunteer their comments but also ask:
• Is there anything on the collage, that they didn’t put up there, that they like?
• What does that mean to them?
• Is it the same thing that the person who put it on there was thinking?
By thinking about other people ideas and discussing what may be a different meaning behind those images / sentences, it gets people thinking more creatively and more about the “big picture”.
Things you have in common – shared by Jenny Robertson, MS Society
Resource was added by: Bec Hanley
On your tables, identify as many things that you all have in common as possible. This may be places that you’ve visited, favourite food, languages spoken etc.
You have 5 minutes to do this.
The table with the most in common wins!
The Three H’s – shared by Claire Britton, CRUK
Resource was added by: Bec Hanley
Purpose of the activity:
A quick and interesting ice-breaker activity to enable a group of people to share top-line information about a recent highlight, challenge and something they’re looking forward to.
How to run this activity:
- Ask everyone to get into pairs.
- Each person to share a recent Highlight, Headache and what’s on the Horizon (hence the 3 H’s) with their partner
- After 5 minutes stop the conversation and bring everyone back together. Depending on how much time you have, ask people to volunteer to share their 3 H’s.
Impact report – Alzheimer’s Society Research Network
Resource was added by: Bec Hanley
What is this resource?
Alzheimer’s Society conducted an online survey and interviews with their Research Network volunteers and researchers they had collaborated with.This report details the output of the surveys and interviews, shares case studies and demonstrates the range of ways involvement can have an impact in research.
Who was it developed by?
Alzheimer’s Society.
When might it be useful?
Read this report to plan or improve the way you capture and share the impact of involvement.
Involving people remotely
Resource was added by: Bec Hanley
This paper focuses on the experience of Cystic Fibrosis Trust, RNIB and National Deaf Children’s Society.
Positive risk-taking: from rhetoric to reality
Resource was added by: Mandy Owens
A discussion paper from Steve Morgan and Nick Andrews for the The Journal of Mental Health Training, Education and Practice.
Purpose – For health and social care services to become truly person-centred requires a fundamentally positive mindset from professionals and care workers, and a willingness to take some risks. The purpose of this paper is to explore how this will apply to delivering dementia services, where almost all of the initial impressions are of deficits, disability and disadvantage.
Arthritis Research UK involvement scoring system
Resource was added by: Bec Hanley
This slide deck explains a system that Chris Macdonald and his colleagues at Arthritis Research UK have developed to enable them to attribute scores to every funded research application to reflect the nature of interaction with patients and the quality of that interaction.
Chris says that although it's not perfect, it means that when you combine the score with other searchable and filter-able criteria, you can correlate scores with institution, individuals, type of grant, research call it was awarded in etc. ARUK can then analyse, assess and identify who needs support, who they can use for case studies or speakers at training sessions, or if a centre needs a slap on the wrist and an offer of training. They can also look at what are the most common types of involvement in certain types research or look across the whole portfolio over time to see how KPI’s (such as a simple ‘have they involved’) change as the community is better resourced and informed.